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district519

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district519 Newbie

recently i have been getting these itchy spots on me, pretty proportional on the body ( 3-4 on left arm ) ( 3-4 on right arm ) and so on... itchy guys, annoying!

Cant sleep at night untill really really late 4-5am

when i do sleep i wake up every 2-3 hours find my self wide awake doing whatever, eating, music, tv, going for a ciggaret.... pissing me of really....

the craziest part is every now and then i get some f'en messed up dreams very real! like i'm being killed by demons, satan pretty creepy, usualy wake up pray and fall asleep.

I learned to control the dreams when i was younger i got dreams like this with demons and satan, and screamed really loud, but learned to control them.

Sometimes i sleep walk, for instance my mom said i went in her room while she was sleeping took her blanket off her and i asked her what she was doing? she said she tried talking to me and nothing, and that i really creeped her out.

i do eat corn, starch anything that includes gluten.... could this be why?


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CarlaB Enthusiast

I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

district519 Newbie
I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

nope havent seen anyone, i made an appoitment for tomorrow... ill let you know what he sais

district519 Newbie

well he said it not celiac, he didnt do any blood tests or nothing, i know from research on my own it has to be celiac..

he gave me meds something called APO-CEPHALEX / CEPHALEXIN 205mg / ORNG/OBL

he said if these itchy dots dont stop growing by monday to go see him again.mmmm

  • 2 weeks later...
byrmanson Rookie

If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

YoloGx Rookie
If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

I have trouble sleeping too. Have all my life. Getting to sleep is rough. I figured out years ago to just keep busy til I drop. Of course this makes it hard to deal with the "real" world. Great for doing art. However I do both worlds since I manage a business--though by being the boss it means I don't have to always be there in the morning. Believe it or not having this condition has made me emphasize getting down to practicalities as quick as I can as well as using and developing my imagination. I am very good at creating strategies and figuring out problems. Probably from all that time I spent being ill. It gave me plenty of time to think about things and get down to basics.

I want to try the melatonin and see if it works. Definitely for me taking vitamin D (cod liver oil) and especially important co-enzyme B vitamins and L-glutamine with water on an empty stomach does wonders. Also anti scarring stuff like nattokinase and/or bromelain/papain combos really help. The co-enzyme B-vitamins stopped most of the leg twitching and pain. However due to an old injury I also do the nattokinase bromelain/papain plus if its bad hatha yoga which calms the mind and body.

An anti gluten diet is a matter of course. I didn't realize though that such small amounts like being around gluten cat food could cause a sleep disturbance. I will definitely have to check on this. Currently I don't touch the stuff but do pour it and then mix in some brewers yeast/garlic stuff with a spoon.. Its hard to always get completey gluten free cat food. Any suggestions?

I have found that taking herbs too like dandelion root and yellow dock root alternated with oregon grape root help the body detox. I think celiac creates a condition that leads to general toxicity which is hard on the liver as well as the intestines and downwind the kidneys. Toxicity creates bad dreams believe you me. As well as ear ringing and having visions. I used to have bad ear ringing but for me using detox herbs and change of diet plus exercise made it go away. It took the co-enzyme b vitamins however to help feed my nervous system and deal with digesting basic carbs and proteins--without which I was rapidly deteriorating despite all my best efforts with diet and herbs etc.

About the ear ringing--change the diet and detox yes. But for some its also caused by a wax build up. Not my problem though it is for a friend of mine who also has celiac.

Things that soothe and heal the gut lining are also good--like marshmallow root and slippery elm and pao de arco (this last also a good anti fungal).

Eat early in the evening too rather than late.

Doing art of course is great. Sounds like you could use something to focus your imagination on. Poetry has also helped me. I often write or do art inspired in the night especially if life will permit or even when it doesn't. You can direct what you decide to focus your imagination on.

Jungian psychology and even re-evaluation co counseling have been of great help to me too. Needless to say having gluten intolerance just doesn't often spring up out of nowhere. Often the family and forebears are involved having created a whole line of possible crazy intolerant behaviours and fears out of ignorance of this condition. So the psychological and emotional effects need to be dealt with as well as the physical food.

Doing protective grounding also sounds like it might possibly be valuable. It has been so for me. There are books on psychic protection that are useful. Also things like the Berkely Psychic Institute could help. Simply imagining a grounding cord from your lowest chakra to the center of the earth and letting all anxieties and all that is not you (other people's energy or entities etc.) go down the grounding cord to get burned up by the great mother earth's core and released to the universe. Similarly imagine a silver cord going from your highest chakra to the universe and pulling in clean energy from All That Is or whatever it is you believe in as Positive Light Energy. Ditto with pulling in the Clean Earth Energy from the lowest chakra. Imagine all that energy cleaning out and filling your auric field and then let the excess go down your grounding cord. Then imagine protective roses or whatever keeping guard at the edge of your auric field and then periodically do the grounding again. I often do this when I am driving but sometimes do it at night. Really I find it helps. You might too. That over developed imagination is usually good for something I find after all.

Hope some of this helps!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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