Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had The Colonoscopy Yesterday

Carriefaith

Recommended Posts

Carriefaith Enthusiast
Carriefaith
Posted

I had my first colonoscopy yesterday. My GI doc wanted to see if there was anything else going on other than celiac disease since I am not improving on the gluten free diet. I may have something in addition to celiac disease. I hope not though!

The colonoscopy was very painful and uncomfortable even though I was all drugged up (I had a sedative, a painkiller, and a drug to help me forget). However, I am still in a lot of pain, it hurts to breath deeply/walk/move. It is a bearable pain just extremely uncomfortable. It feels like my entire colon/large intestine is badly bruised or something. I also feel nauseated.

I know some of you have had colonoscopies and I was just wondering if this is a normal reaction and if anyone else has experienced these symptoms?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Seosamh Newbie
Seosamh
Posted

Yes, one often does feel a bit out of it for a day or two after a colonoscopy. I've had one and my girlfriend has had two. I certainly felt a bit bruised inside. I hope you figure out what's going on!

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Medaka,

I am glad you got the colonoscopy over with. I was a bit sore for a few days afterwards also. The dr. said that I would be since he took numerous biopsies from various areas. Do you know if your doctor is checking for collagenous colitis? That's what they found I have and that's why my diarrhea continued even though I was thoroughly gluten-free.

Also, if I remember correctly, you also have a problem with energy like I do. I have been investigating hemp hearts. They sound quite promising....

Have a great day!

Karen

Carriefaith Enthusiast
Carriefaith
Posted
  • Author

Thanks so much for your replies. I feel better knowing that it's somewhat normal to feel pain for awhile after the test.

My doctor didn't specifically say what he was looking for because I guess the problem could be a number of things. My doctor told one of the nurses that my colon looked ok with no obvious problems (I'm assuming that means it's less likely to be chron's/ulcerative colitis/polyps/diverticulitis, which is great B) ). He took biopsy's during the colonoscopy and I will have to wait awhile for the results. Other than collagenous colitis, I'm not sure what else they may find in the biopsy's.

I'm not exactly sure what hemp hearts are? I'm assuming they help with energy? That would be wonderful! I need energy!

Thanks again! :)

-Carrie

lovegrov Collaborator
lovegrov
Posted

Not to sound discouraging, but I remembered nothing at all about my colonscopy and had no residual pain at all. My doctor said my experience was the norm, and most people I've heard talk about this said the same.

richard

Canadian Karen Community Regular
Canadian Karen
Posted

Here is a link regarding the hemp hearts....

Open Original Shared Link

Hemp oil might be easier to find though..... I believe that has the same benefits.... Still looking into it though....

Have a great day!

Karen

Canadian Karen Community Regular
Canadian Karen
Posted

Here is another one:

Open Original Shared Link

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Twister2 Contributor
Twister2
Posted

Hi there! I just had my colonoscopy last Tuesday. I was put out for it though. (Thank God) I had sharp stomach pains for about two days and a sore throat. I'm thankful its over!

Twister2

SteveW Rookie
SteveW
Posted

I was out like a light during my Colon/Endoscopy(sp?) and can't remember a thing.

The prep was a bit painful from the amount of bathroom trips :blink:

I was a little tender for a few days after but it cleared up after that.

I would call my doc if I felt extreme pain afterwards!

Carriefaith Enthusiast
Carriefaith
Posted
  • Author

Thanks everyone :)

I guess I was the small percent of people that get to feel the entire process, pain and all. The pain meds didn't work too well! I am feeling a lot better today, a little discomfort but nothing too bad. It sort of feels like I did 200 sit-ups. You know that sore muscle feeling.

Thanks for the links Karen, I'll look into that!

Guest Lindam
Guest Lindam
Posted

;) I, thank goodness, did not have any discomfort after either the colonoscopy or the endoscopy. I think if you're not feeling well SOON, I would call the doctor. I was also put out for both and the only "pain" I had was the MANY trips to the bathroom.

Feel better soon!

Linda :)

  • 1 month later...
jknnej Collaborator
jknnej
Posted

Wow, sorry to hear about all those symptoms. I was out like a light during my coloscopy and felt nothing after-but my doc did say to call if I experienced those symptoms or go to the hospital if I couldn't contact him.

Mine was only 2 weeks ago and I have felt weird pains in my intestines, I think from all the biospies.

Sterndogg Apprentice
Sterndogg
Posted

Mine was a rather uncomfortable experience as I constantly felt like I was gagging even with a sedative and an anti-gag reflex drug...def out of it for a day or so and did feel somewhat sore inside...not pleasant!!!

judy05 Apprentice
judy05
Posted

Apparently I cried out during the colonoscopy. The doctor said

everytime he advanced the tube I would cry. I was sedated and don't

remember too much. He said he never had anyone react like

that. My husband said that I told him, "i told you I was sick."

I had no further pain afterwards, just felt out of it. They found

one small benign polyp and hemmorrhoids. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.