Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Va Hospital


Kamper

Recommended Posts

Kamper Newbie

Hello everyone I am new here.

A quick background about me.

I am a 22 year old Iraq veteran. I spent 4 years with the Marine Reserves (Infantry). With one tour in Iraq. I never had any digestive issues before Iraq but after I returned things started to change. I always had gas and cramping but never thought anything of it. Ever since I returned I have never been able to put a pattern on my bowel movements. I have a feeling it stems from when I ate local food which played havoc on my digestive track.

Then last February (weeks before my wedding) I had lower right abdominal pain and went through a barrage of tests from stool samples, to CT scans, to x-rays. Even gave me IBS medication to see if that helped (you guessed it.. it didn't) All by civilian doctors. All came back normal so they sent me to a GI specialist and he suggested using a heating pad to make sure it wasn't muscular-skeletal. Well low and behold my back started having issues so we found that, but that still doesn't explain all the intestinal issues. I was going to start Physical Therapy for my back until I discovered that it was going to cost me about $1000 before insurance. So I went to the VA.

The VA did help, got me into PT and even ran an ultrasound to see if I might have gallstones (I didn't) He suggested for me to try eliminating certain food groups starting with dairy and then moving on to others to see if that had any effect.

Well dairy had no effect and then I just decided to deal with it and I have been doing that for the past 8 months. Until we talked to one of our neighbors who has Celiac Disease and was sharing the symptoms and red lights started going off. Low and behold I remembered my aunt having a wheat issue so I gave her a call. Turns out she was diagnosed with C.D. and my father has similar symptoms (which oddly went away when he was on the Atkins diet).

So I called the VA and left a message and they called back several hours later. I told them of my findings and they said that they would talk to my doctor and the head doctor about testing options. I told him I could not go on a wheat free diet until after the tests as it can give false negative (I thank all of you here for that information) at which point he said that they would call back tomorrow afternoon because the head doctor doesn't come in until 1:30. So I will find out tomorrow after noon if the VA is going to redeem itself for some of their other issues. Please hope and pray that they have some common sense.

Sorry for the long post


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome Kamper!

It sounds like me that you are one of us already (just awaiting testing ;) ). Your symptoms as well as your strong family history points in that direction.

Whether or not your testing indicates Celiac, a positive dietary response is the best diagnosis....and it don't cost a thing.

I am happy for you. It sounds like this may be the end of your discomfort and a new day.

kbtoyssni Contributor

Sounds like you might have your answer. I agree with Momma Goose - no matter what the VA says, I'd go ahead and try the diet. With your family history, it certainly can't hurt. And remember that gluten is wheat, barley, rye and oats - not just wheat (I noticed you just mentioned wheat in your post and wanted to make sure you go completely gluten-free!) Welcome and good luck!

Kamper Newbie

No word from the VA so I left a message mentioning again that I can't change my diet until after tests and that I am rather miserable.

They have until the new year to redeem themselves at which point I get some decent insurance and then go the civilian route. So there is a good chance that I will be glutening myself for 3 more months. <_<

(A large part of me wonders why they want to have socialized health care nation wide. They can't even run the VA health care system which is an example of socialized health care.)

AMERICA where everyone can get fair health care!... after waiting for months in line.. and in pain!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.