Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think My Daughter Might Have Celiac-starting The Whole Process


mommy2almost3

Recommended Posts

mommy2almost3 Newbie

My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

My 3 year old's blood work was accurate. She had the Celiac Panel and had it come back highly positive. I hope you find answers soon!

Kibbie Contributor
My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara

My daughters blood work was positive at 18 months old.... if you get a positive there is no question so I believe its worth a shot.

mommy2almost3 Newbie

I'll bring up the blood test at her appt. since there's a chance it might pick it up-my husband's sister has a lot of celiac symptoms and had blood work done-she said some came back 'gray' zone?? The gi specialist suggested the biopsy but she won't have it done-she's 22 and she just doesn't want to deal with it right now. But if she has it, then the heredity thing is a lot closer to my kids. sara

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    2. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    4. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,837
    • Most Online (within 30 mins)
      7,748

    Chat
    Newest Member
    Chat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.