Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Knots


Joyous

Recommended Posts

Joyous Enthusiast

Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes. Between that and my arthritis and my ataxia any movement at all was really hard. It was also agony to be touched with any firmness. A 'relaxing' massage would leave me in extreme pain for hours. I had been like this for so long that for most of my life I thought it hurt everyone to have someone give their shoulder a squeeze. This went away for me within 6 months gluten-free.

Joyous Enthusiast

So there is hope! :D

YoloGx Rookie
Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)

please see my post I just sent on leg pain, diet, herbs

ravenwoodglass Mentor
So there is hope! :D

I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

Open Original Shared Link

I hope you get some relief soon.

Joyous Enthusiast
I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

Open Original Shared Link

I hope you get some relief soon.

Thanks. :)

Looking at your list of misdiagnoses helps me feel like there's hope as well. I fit the diagnostic criteria for a number of those, but I'm not satisfied with calling those things anything other than sets of symptoms. I want to find the root cause.

At this point I would actually be disappointed if I don't have some sort of problem with gluten. lol

I'm so tired of hearing "there's nothing wrong with you" from family and friends and having doctors blame everything on stress or depression.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.