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Joyous

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Joyous Enthusiast

Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)


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ravenwoodglass Mentor

Yes. Between that and my arthritis and my ataxia any movement at all was really hard. It was also agony to be touched with any firmness. A 'relaxing' massage would leave me in extreme pain for hours. I had been like this for so long that for most of my life I thought it hurt everyone to have someone give their shoulder a squeeze. This went away for me within 6 months gluten-free.

Joyous Enthusiast

So there is hope! :D

YoloGx Rookie
Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)

please see my post I just sent on leg pain, diet, herbs

ravenwoodglass Mentor
So there is hope! :D

I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

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I hope you get some relief soon.

Joyous Enthusiast
I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

Open Original Shared Link

I hope you get some relief soon.

Thanks. :)

Looking at your list of misdiagnoses helps me feel like there's hope as well. I fit the diagnostic criteria for a number of those, but I'm not satisfied with calling those things anything other than sets of symptoms. I want to find the root cause.

At this point I would actually be disappointed if I don't have some sort of problem with gluten. lol

I'm so tired of hearing "there's nothing wrong with you" from family and friends and having doctors blame everything on stress or depression.

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