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Muscle Knots

Joyous

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Joyous Enthusiast
Joyous
Posted

Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes. Between that and my arthritis and my ataxia any movement at all was really hard. It was also agony to be touched with any firmness. A 'relaxing' massage would leave me in extreme pain for hours. I had been like this for so long that for most of my life I thought it hurt everyone to have someone give their shoulder a squeeze. This went away for me within 6 months gluten-free.

Joyous Enthusiast
Joyous
Posted
  • Author

So there is hope! :D

YoloGx Rookie
YoloGx
Posted
Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)

please see my post I just sent on leg pain, diet, herbs

ravenwoodglass Mentor
ravenwoodglass
Posted
So there is hope! :D

I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

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I hope you get some relief soon.

Joyous Enthusiast
Joyous
Posted
  • Author
I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

Open Original Shared Link

I hope you get some relief soon.

Thanks. :)

Looking at your list of misdiagnoses helps me feel like there's hope as well. I fit the diagnostic criteria for a number of those, but I'm not satisfied with calling those things anything other than sets of symptoms. I want to find the root cause.

At this point I would actually be disappointed if I don't have some sort of problem with gluten. lol

I'm so tired of hearing "there's nothing wrong with you" from family and friends and having doctors blame everything on stress or depression.

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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