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Joyous

Muscle Knots

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Yes. Between that and my arthritis and my ataxia any movement at all was really hard. It was also agony to be touched with any firmness. A 'relaxing' massage would leave me in extreme pain for hours. I had been like this for so long that for most of my life I thought it hurt everyone to have someone give their shoulder a squeeze. This went away for me within 6 months gluten-free.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Is this a symptom of Celiac Disease?

(I'm particularly interested in chronic myofascial pain, especially if it began after an injury.)

please see my post I just sent on leg pain, diet, herbs


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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So there is hope! :D

I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

http://www.csaceliacs.org/gluten_choices.php

I hope you get some relief soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I had lost all hope by the time I was finally diagnosed and if I, and others who are just as badly damaged as I was, can recover you can too. It does take some time and great diligence about the diet but healing can happen. To speed healing you should try and eat as much naturally gluten free food as you can in as pure of a form as you can. If you can you should avoid dairy also for a bit until you heal. Don't rush a lot of specialty gluten free stuff at first and check everything that goes into and onto your body. Don't assume any med is safe, script or OTC, gluten or any allergin is not covered under the same labeling regs as with food. As strange as it sounds even check your pet food, that is a common source of CC that many including myself don't think of at first.

You have come to a great place for info and support, make sure you check out the info Scott has on the front page and another site that is very good is the celiac sprue associations.

http://www.csaceliacs.org/gluten_choices.php

I hope you get some relief soon.

Thanks. :)

Looking at your list of misdiagnoses helps me feel like there's hope as well. I fit the diagnostic criteria for a number of those, but I'm not satisfied with calling those things anything other than sets of symptoms. I want to find the root cause.

At this point I would actually be disappointed if I don't have some sort of problem with gluten. lol

I'm so tired of hearing "there's nothing wrong with you" from family and friends and having doctors blame everything on stress or depression.


Joy

Not gluten free yet because I'm waiting to be tested.

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