Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introducing Myself


writerspice

Recommended Posts

writerspice Newbie

Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)

Hi Writerspice, welcome!

It does, sometimes, get worse after going gluten free before getting better. Hang in there. I also got stomach cramps/weird pains after going gluten free but they are mostly gone now.

McCormicks' spices are always gluten free (or they will say that they are not gluten-free on the label). I use their chili powder and curry powder all the time. I also drink Lipton's black tea and green tea and they are both gluten free. Some teas do have gluten (there was a recent thread about Tzao teas on the "Products" forum of this site) and flavored teas especially can be suspect. So check out your brand/flavor by calling the manufacturer or looking on their website.

I can't remember where I read about pregnancy success w/previous infertility after going gluten-free...maybe search this forum under the "pregnancy" topic. I read that some infertility specialists test all patients and that in Europe it is common to test infertile couples. Good luck to you!

~Laura

writerspice Newbie

Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

kevsmom Contributor

Welcome, Writerspice! Please feel free to ask any questions that you have. Someone here is bound to have the answer. If they don't - they will find out for you.

When you first go gluten-free, you will find so much information - don't let it overwhelm you. You can only absorb so much at one time. Don't worry - after a while it will seem like second nature.

Cindy

writerspice Newbie

Thanks, Cindy. The questions just keep coming...

Daughter-of-TheLight Apprentice

Welcome! Ah... about the supplements.

I don't really know a lot, but I do know this. Because our intestines are not absorbing nutrients properly, we sometimes need to take supplements. I take Iron, Calcium, and some Teen Girls multivitamin. I suggest you research the topic and get some input from your doctor on which nutrients are deficient. I was anemic... though since i'm "growing" (HA!) I need to take calcium to prevent calcium deficency... but I have no idea what your needs are, so I can't suggest anything.

Light

gdobson Explorer

Hi Writerspice and welcome.

I had 2 miscarriages before going gluten free, but I managed to have 2 wonderful children - although both premature and one is celiac.

I have heard of many other women who had difficulties getting pregnant before going gluten-free, and then were able to conceive after.

I wish you a lot of luck, happiness, and health.

Gina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Welcome writerspice. I have also had some signs of improvement, then got worse. For me it has been a number of things.

Stopping use of gluten containing personal products helped. Starting l-glutamine to help with the gut healing has helped.

Are you also milk-free? If you are celiac, many many cannot tolerate milk, at least early on in the healing process.

I had to go both milk and soy free. I figured out the latter by doing an elimination diet. Soy can also cause damage to the villi of the intestine, according to research.

Also my lyme disease recurred after doing Gluten-free Casein-free, so I am having to treat that again which complicates the healing process.

Re the constipation, for me it has been an intestinal motility issue...where the gluten and perhaps other things, just shuts things down. The weird tight pains for me I think are a sign of the intestines "waking up" and starting to work. After 6 months, I have some amount of daily stool with the help of a morning and evening dose of buffered vitamin C powder that also has magnesium in it. I now take half of the dose of that I was taking in the early summer. I also now have diarrhea much more often than I used to. I was bloated before but rarely uncomfortable, I am now more aware of the discomfort. My sense is that this is simply a gradual healing process and I need to be patient.

One other thing, have you done any other treatment for parasites?

kevsmom Contributor

Writerspice,

When I first went gluten free, I thought I was doing really well...and then I realized that my vitamins contained gluten! It even said so right on the label.

You also need to check to see if any medication that you take is gluten free. You can check this website: http:/www.glutenfreedrugs.com or write/phone the manufacturer directly.

Cindy

cyberprof Enthusiast
Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

Canadian products can be quite different, I hear. There are a lot of Canadians on this board, so I'd post a question on the "Products" part of this forum. I'm sure you'll get some good help on that.

~Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      14

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    3. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    5. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748

    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.