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Test Results Are In . . .

Shannnn

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Shannnn Newbie
Shannnn
Posted

Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

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hayley3 Contributor
hayley3
Posted

Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

sissyjane Newbie
sissyjane
Posted
Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

I'm new around here, and interested in where you read that IBS could be a mild form of Celiac Disease. I'm arming myself with information before I ask my doctor to do the tests on me. I don't think he is going to want to...

CarlaB Enthusiast
CarlaB
Posted

You might also check this out. Open Original Shared Link It has similar symptoms to celiac disease and can cause food sensitivities.

hayley3 Contributor
hayley3
Posted

It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

Oops! I meant to say thank you!

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Joyous Enthusiast
Joyous
Posted
Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

You could still have Celiac Disease, and it sounds like you are gluten intolerant. Try an elimination diet. There's lists of stuff with and without gluten available online, and taking L-Glutamine is (according to what I've read) good for keeping cravings at bay while you're adjusting. I'm also a fan of DLPA.

Cut gluten out of your diet and see how you feel after a couple of weeks. (It can take a lot longer to totally heal, but I think most people notice a difference within the first two weeks.)

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