Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Buckwheat Question


mela14

Recommended Posts

mela14 Enthusiast

Hi,

I am new to this forum and having a hard time with this diet. I've been so sick for soooooooo long and will spare the details at this point. I've recently been told that I have a gluten intolerance by a new doctor that I went to see. He did some blood tests and it showed that I was very strong positive for the gliadin AB.

I've been watching my gluten and feeling somewhat better but since seeing a dietician and keeping a food diary we've noticed that I am affected by other foods as well. It seems that eggs, peanuts, soy to name a few have been making me ill. This morning I had some guten free hot cereal and had the same sick feeling. I noticed that it had buckwheat, brown rice and corn sorghum.. I have been eating brown rice almost daily with no problem. Last night I had corn in my mixed vegetables...no problem! I remember eating buckwheat dry cereal years ago and I think it made me ill. The only other ingredient in the hot cereal that could have made me ill was the buckwheat but in researching on the website I read that it is a safe grain. Has anyone else had any problems with buckwheat? Is there anyplace that I can get more information on this? I seem to be having the same symptoms as with the other problem foods: first allergic reaction, sneezing, stuffiness, migraine, then sour stomach, stomach pains and horrible bloating and feeling like gut is on fire (sometimes diahrea)....which persists all day and often into the next. Lastly, muscle pain and fatigue.

I don't know what to eat anymore and this is getting very upsetting and discouraging. Any insight?

Thanks,

Mel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Buckwheat does not contain an offending gluten (it's actually a fruit) but you can still be allergic to it or intolerant of it. Try eliminating it, then testing with JUST buckwheat to see how you respond?

joem5644 Newbie

The problem with processed cereals is that many companies use the same manufacturing facilites for various cereals. Therefore, there may be contamination problems. Buckwheat is gluten free but they may have been manufacturing "wheaties" before. Therefore, you must check with the manufacturer to see if the facility is gluten free. Ususally, that is the problem. If they have a website, go there. I hope this helps. Joe

  • 2 weeks later...
mela14 Enthusiast

Thanks for the buckwheat advise. I will definatey never have it again. I remember it made me sick years ago before I even knew what was giong on with me. In doing some research on line...it was listed with foods to avoid. I should have known.

thanks,

stef-the-kicking-cuty Enthusiast

Hi mel,

even it was listed on their website to avoid. Maybe you can have it from another manufacturer. And even if this gluten-free hot cereal bothered you, there's also a flour made of buckwheat from Arrowhead Mills. It actually states "wheat free made with non gluten ingredients" on the package. So, if you're not allergic to buckwheat you should try to bake with buckwheat flour in your flour mixes. It's very delicious...

Stef

mela14 Enthusiast

Thanks stef,

I think I'll just steer clear of it for now. It just doesn't work for me. I was so sick from it that it's just not worth it for me.

Thanks for your help though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.