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Uh Oh.........

Gentleheart

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Gentleheart Enthusiast
Gentleheart
Posted

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Ursa Major Collaborator
Ursa Major
Posted

What are your other food intolerances?

Gentleheart Enthusiast
Gentleheart
Posted
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Ursa Major Collaborator
Ursa Major
Posted

Well, I was thinking dairy and/or soy. Since you are avoiding those already, that's not it.

There is NO POINT in doing a gluten challenge and endoscopy. Nothing will be gained by that, and much can be lost.

But an endoscopy is still a good idea, to see what is going on. You may have refractory sprue. An endoscopy may still show blunted or nonexistent villi, which would confirm it. I hope that I am wrong, but it is unfortunately a very real possibility.

In the meantime, you may want to try eliminating more foods, especially nightshades, to see if it makes a difference.

I am sorry I can't be more helpful than that.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

ONe possibility: our supermarket put out a list of gluten-free flours--and Bob's Red Mill Spelt flour was on the list! Spelt (as you probably know) is WHEAT, and therefore major gluten.

ALso, if you are on any meds, maybe they might either contain gluten or else possibly cause diarrhea and therefore leaky gut, and that might be your fat absorption problem? Or perhaps you are hyperthyroid? That could also cause diarrhea, and has a high concurrence rate among celiacs.

Bloodwork might be useful here--see how many antibodies you are producing. If your anti-gluten antibodies are low, but fat absorbtion is also low, then gluten might not be the trigger here, right? It might be something else.

ravenwoodglass Mentor
ravenwoodglass
Posted

What were the results of the rest of the enterolab testing?

I agree that you need to check all meds you are on. One thing I would check is if any of them have side effects that could be causing your symptoms. If you google the meds one by one and look for the companies statements on the drugs that could be an eyeopener. Also are any of them generics? Generics can change binders at will and there are no regualtions requiring them to even let us know that wheat starch or gluten ingredients are included.

Also do you have pets and do you feed them gluten containing foods? Do you do a lot of crafts? Have you been doing any home improvement projects? Those 3 things alone kept me symptomatic for a long time till I realized I needed to check those items.

Gentleheart Enthusiast
Gentleheart
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