Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone Help Me Out Here?


mrbr33

Recommended Posts

mrbr33 Newbie

I'm not really sure where to start here...when my son was around 18 months old he developed a really severe diaper rash. He never had diaper rash before that. It took FOREVER to clear it up. I began to notice that when he ate processed tomato products it would flare his rash up.

I mentioned to his ped. at his 2 year visit that his bowel movements are very mushy. The ped. said it was because he eats so healthy. We do eat lots of fruits/veges, chicken, etc. No juice or soda. No fruit snacks.

This summer (he was 2 1/2) he had a small circular patch at the top of his butt crack that would not go away and would flare up at certain times. Took him to the derm. and they said he had mild eczema.

At the end of the summer I took him to an allergist...I just didn't think the loose, frequent stools he was having were normal. She said no milk allergy but possibly lactose intolerant and if it didn't clear up he should see gastro.

He will be three in January and I can count on one hand the number of formed bowel movements he has had. They are large mushy, wet movements. There are some mornings he has 3 large movements by 11AM. There are also times when they are grainy and sand-like. There was a thread on this website that described it perfectly...it's so hard to get off with a wipe, you almost need to pick the pieces. I usually end up just throwing him in the bathtub, which is what I did this morning. He has a terrible rash right now.

Currently, I am waiting for a referral to go through for him to see gastro.

Behavior wise - he is VERY busy. My mom thinks his temper tantrums are worse than other children his age. When he wants something he will start to throw a fit if it's not immediate.

I should also mention that he has always been in or above the 90th %ile in height/weight. I sometimes wonder how with the amount he poops!

I just have that feeling that something is not right with his gut...I'm hoping gastro can help. From reading these threads I think maybe my first step is to let him continue to eat what he normally does and keep a food and stool log for a few weeks?? I don't know much about celiac...what are some other symptoms (in toddlers) I should be looking for?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

Your son's symptoms sound very similar to my daughter's. I had never heard of Celiac and was surprised when the pediatrician requested the celiac panel along with the other blood tests they were running.

Definitely keep him eating what he normally eats if you want to have testing done.

My daughter was irritable (we called it "the terrible 3s"), was a picky eater, had an extended belly but was thinner than all of her friends, was mildly anemic since infancy, had bms like you described, had a very hard time potty training, and had episodes of "stomach flu" every few weeks but no one else seemed to catch it.

Tori's Dad Apprentice

My daughter was diagnosed 2 weeks after her 5th birthday. She would go 2 days without a BM then have 3 within half an hour. They were loose and looked greasy or fatty. Like foam floating on the water in the bowl. In her case, the smell was unbelievable!

In addition she was below 5th percentile.

Your child's symptoms sound quite different but one thing Celiac will teach you is that everyone's symptoms are different. I would definitely get the blood test for him.

Good luck!

NewGFMom Contributor

You don't have to wait for your referral to get tested for celiac! I'd take him back to your pediatrician and ask for the ELISA panel of bloodwork. This doesn't preclude going to the gastro, but you can get some answers more quickly. Our normal doctor did my son's original bloodwork and we went to the gastro after that.

My son also had no problems with the growth chart, but had weird poop and frequent tummy aches. My husband just tested positive and he has no symptoms whatsoever. It's a weird disease, but it's live-able, if not cure-able.

Keep us posted on how he does!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.