Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction Time


snomnky

Recommended Posts

snomnky Apprentice

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

it takes me somewhere between 15 minutes and 2 hours. it takes others here more than a day.

Cherry Tart Apprentice

Hello!

My reaction time is usually 15 - 20 minutes for a heavy glutening or as long as two hours - depends on the amount for me. It usually takes me a day or two to recover. If you're sure his reaction isn't to food, could it be his/your toiletries? Have you checked out his/your lotion, powder, and shampoo? At that age, they are more apt to putting things in their mouths or swallowing water/shampoo during a bath. I'm not sure how long he's been gluten-free, but it may take him a while to recover if he's new to the diet. It took 6 months for my system to calm down. Hope he's feeling better soon! :)

kenlove Rising Star

For me its usually 10 to 30 minutes, faster when I inhale something in the air than when i eat something that was supposedly gluten-free.

My son is 2.5, he has Celiac, his reactions are atypical according to the GI, his poop turns white/grey and it looks and smells EXACTLY like vomit. He used to vomit when he was younger, but now it is just the poop and irritability. Anyway, I am concerned that even though he has been diagnosed via biopsy that something else is happening. I just really don't understand the poop smelling like vomit and when i tell a doc they look at me like i am crazy. He is still in diapers and the poop burns he bottom to the point of widespread blisters that open and ooze, it causes immense pain for him. Does anyones children have a similar reaction?

My question- how long does it take your kids (or yourself) to react once you have ingested gluten. My Son is in a reaction, but we can't trace it to a specific food, the time line just doesn't make sense. (another reason why i am paranoid there is something else going on)

By the way, we have done extensive allergy testing and have found DS to have no other allergies or intolerances to foods, besides Celiac.

Thanks for the help!

snomnky Apprentice

Oh, thank you! For some reason i thought the reaction would take a lot longer, but he grabbed a bag of chips that had been in a bag with wheat bread, then took a sip of my water that i had been drinking while eating the wheat bread. I am sure that was it! Since it was only 5hrs or so i thought it was something else. But that would explain it!

what about vomit smelling poop, a normal response? He has been gluten-free since 6mo old and we have eliminated nearly every bit of gluten from our home (other than the occasional sandwich for me and his dad) but every reaction seems to be worse than the one before.

Kaycee Collaborator

It takes me a couple of hours for my stomach to know that I have eaten gluten. The diarrhoea doesn't set in till about a day and a half later, unless it is a bad case, and then it is sooner than that. As for the vomit smelling poop, I know when I have been glutened my poop smells terrible, and that is part and parcel of coeliac.

Cathy

JustMe75 Enthusiast

It takes me 15 minutes to an hour, and my first symptom is urgent diarrhea that lasts for hours. It still amazes me that something I barely finished chewing could already have gone through my whole digestive tract and caused problems. As far as the vomit smell goes, does it smell like bile, like acidy vomit? That would explain the burning. I know for me when I get sick it burns like you wouldn't believe (and I'm not even sitting in it ;) ) and I think its the acids from my stomach that were suposed to digest the food but were forced out too fast.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

It normally takes about 2 hours for me. I get the acid poops too--that usually goes on for a few days. I feel much better by a week, but not completely back to normal for almost 2 weeks.

My reactions are much less severe than they used to be (I've been gluten-free for 2.5 years now)

aeshlea Apprentice

also dosent take me too long. If its a small amount I feel it quicker ironically. And it usually is just a massive headache within 20-30 minutes...but if its a larger amount I always have D within a 2 hour time period..usually by the 1 and a !/2 hour mark.

snomnky Apprentice

I really applicate all the replies. We went 5 mo with no reactions! But then a reaction happens and I get worried and start wondering if this is normal. He is very verbal for a 2 yr old boy, so with this poop he told us right away that there was an owie in his pants we couldn't see.

I always worry that with every exposure he will be so much worse next time, this has been the case so far. With this reaction we saw a severe behavioral reaction as well.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,512
    • Most Online (within 30 mins)
      7,748

    Kristagram
    Newest Member
    Kristagram
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.