Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Tried Using The Gluten Flow Through Rapid Test


holiday16

Recommended Posts

holiday16 Enthusiast

to test a product for gluten? The webpage to see what I mean is:

Open Original Shared Link

I'm planning on ordering a package of two tests, but was wondering if anyone has ever used it before or has any feedback. I read all the instructions and it seems it will work for my purposes. I used to use a protein drink, but occasionally I'd get a can that has what must be low levels of gluten and after a few days I begin to react. My dd was taking it and the same thing happened with her as well. My plan is to order this kit and test a container and if I can find one that tests o.k. I'll stock up on as many of the ones from that lot number as I can. I haven't been taking it for several months now and I'm not feeling well without it so I'm really hoping this works. I tried a dairy based protein to eliminate grain cross contamination issues, but found I now have a problem with dairy so it's no longer an option.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Please don't waste your money. Learn to read labels instead.

holiday16 Enthusiast
Please don't waste your money. Learn to read labels instead.

It's not to test because I don't know if the ingredients are gluten free ingredients, they are. It's because there must be some level of cross contamination of the ingredients themselves occuring most likely during harvesting. Since the company at this point does not test their ingredients for gluten I'm basically testing the end product myself. I've had this same problem occur before with some cookies that were gluten free because I was eating them everyday and from what I can tell for me is that if it has low levels it accumulates. The cookies however I could live without, but I'm really hurting without this supplement. If the company tested for gluten I wouldn't bother, but they don't at this point. I'm trying not to get into too much detail, but I do have some other good reasons for doing the testing :o)

JNBunnie1 Community Regular
It's not to test because I don't know if the ingredients are gluten free ingredients, they are. It's because there must be some level of cross contamination of the ingredients themselves occuring most likely during harvesting. Since the company at this point does not test their ingredients for gluten I'm basically testing the end product myself. I've had this same problem occur before with some cookies that were gluten free because I was eating them everyday and from what I can tell for me is that if it has low levels it accumulates. The cookies however I could live without, but I'm really hurting without this supplement. If the company tested for gluten I wouldn't bother, but they don't at this point. I'm trying not to get into too much detail, but I do have some other good reasons for doing the testing :o)

Perhaps we could help in finding you an alternative protein supplement, or alternative diet that provides more protein, instead. I'm guessing that would be a thriftier investment of your time. you could even buy rice protein and mix your own drinks?

  • 1 year later...
Travelpals Newbie

I just had success using both the HAVen flow through kit and the EZ Gluten kit. I was interested in testing the gluten and gliadin levels present in a green super-food drink called Tonic Alchemy. Before I was diagnosed with Celiac Disease I enjoyed a variety of different super-food drinks on occasion. It was something I was hoping to incorporate back into my diet. I found both tests easy to use. EZ Gluten was simpler and something you could take with you when you travel to actually test soups & sauces, etc. The HAVen flow through test was a bit more complicated but very precise in it's results.

Both tests are designed to detect between 10-20ppm. The HAVen results are less black & white for a positive read. Open Original Shared Link

In today's testing with the HAVen kit a partial and barely visible positive dot started to show. Based on the interpretation scale this would indicate 25ppm. The EZ Gluten showed a positive result. I plan to test a couple more super-food drinks to see how the results vary. I think it is incredibly cool that you can satiate your curiosity about a product for between $12-$15.

Overall I like both the kits. I feel like the HAVen kit is a little more scientific but I wouldn't take it on my travels abroad because of it's many step process. Honestly, I do a lot of traveling and have never had the need to do a test. I "go without" a lot. Now that I know about the EZ Gluten test I might take it in the event I see something questionable. For tests I do at home I will most likely order more of the HAVen kits.

I can appreciate where you're coming from with your protein drink situation. I've enjoyed Jarro protien powder but I believe that is whey which would not be good for you.

Best of luck-

Martha

dilettantesteph Collaborator

I have had success with the tests. For example, once my son got sick when we hadn't made any changes to his diet. It was a contamination issue of a gluten free food. There was no suspect ingredient in the food. It was labeled gluten free. The company stated that they test to 5 ppm. There was no warning that it was processed in shared facilities. I started testing with the foods I suspected the most and I was able to find it on the second try. I was able to help my son get better without having to go back to basics and adding things one at a time. i was able to feel confident that I was removing the correct food. Well worth the cost.

Mike M Rookie
to test a product for gluten? The webpage to see what I mean is:

Open Original Shared Link

I'm planning on ordering a package of two tests, but was wondering if anyone has ever used it before or has any feedback. I read all the instructions and it seems it will work for my purposes. I used to use a protein drink, but occasionally I'd get a can that has what must be low levels of gluten and after a few days I begin to react. My dd was taking it and the same thing happened with her as well. My plan is to order this kit and test a container and if I can find one that tests o.k. I'll stock up on as many of the ones from that lot number as I can. I haven't been taking it for several months now and I'm not feeling well without it so I'm really hoping this works. I tried a dairy based protein to eliminate grain cross contamination issues, but found I now have a problem with dairy so it's no longer an option.

Holiday 16, in my opinion, you are going to love it (testing that is). You just can't beat having a way to know for sure if a product does/does not have gluten. According to the manufacturer, the EZ gluten is 99% accurate. Be careful as you will get hooked on testing! Welcome to the new, improved, gluten free (because I can test and prove it) modern world! All the best, Mike


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holiday16 Enthusiast

I have ordered and used the EZ gluten test strips since posting this (I had used the Haven ones before). Unfortunately, the protein drink I want to test overloads the sample. I started using half the amount to test which the company said means I am then testing for 20 ppm and not 10. Seemed to be fine though and it was at least working that way.

I had no positive results on anything I tested so I got lazy and when I opened a new case of protein I didn't test it. I started having the same reaction I did the last time I happened to get a can w/ low levels of gluten. It's not a typical gluten reaction. Over several days I started having essential tremors and began to go into the start of a trigeminal neuralgia episode. The only TN episode I had before this was the last time I had protein w/ low levels of gluten. My dd was also taking it and after a few days it hit her hard.

I tested it and within the 10 minute window it seemed to test neg., but a short while later I noticed it had a very faint positive. I called the company and they said when it's after the 10 min. window they can't guarantee why it does that, but they do suspect it means it contains levels below what the test can test for. I retested using the full amount (remember I used half before) and it did overload the sample, but I let it sit a while and when I was able to read it there was a stronger positive than before. I've done these tests in the past and while I do read them within the time frame I let them sit and look at them later and there was never a positive and I didn't react to the product. This time I had a reaction and after sitting for a while a positive test. I know the company can't say that's a positive, but in my experience at least w/ this product it was.

I stopped taking the protein and the TN went away and the tremors. To be honest after seeing how soybeans are harvested and knowing that farmers use the same equipment to harvest other crops I'm amazed that all soy products aren't contaminated. I grew up in farm country and talked w/ other farmers and they agree.

I'm fortunate that if I get a positive hit when I test this protein I have someone who will take the case back and give me a new one so I can test that. This way I only have to test one can out of 6 rather than testing each one. Much cheaper that way!

The one good thing is I can tell my Drs. for sure that gluten is the cause of the TN. Everyone dismissed it before as a possible cause and now there is no doubt. I googled it at the time and did find this article:

Open Original Shared Link

I was tested for MS because of this and it was negative. Never ceases to amaze me what gluten can do!!!

Paulette

dilettantesteph Collaborator

That is very interesting that leaving it for longer can get a low positive result to show up. From now on, I will look again after longer. I did notice once that when I looked later, I saw a faint positive that I hadn't noticed before, but I thought I just hadn't looked hard enough before. I think weak positives show up better under fluorescent light. I need all I can do to make the test more sensitive. My son and I both react to really small amounts. Thanks for sharing.

dilettantesteph Collaborator

One more thing. Could you compare the EZ gluten with the Haven? Ease of use, sensitivity, cost... Where did you get the Haven? Thanks.

Mike M Rookie
That is very interesting that leaving it for longer can get a low positive result to show up. From now on, I will look again after longer. I did notice once that when I looked later, I saw a faint positive that I hadn't noticed before, but I thought I just hadn't looked hard enough before. I think weak positives show up better under fluorescent light. I need all I can do to make the test more sensitive. My son and I both react to really small amounts. Thanks for sharing.

I always save the strips and look at them the next day. Several times there has been a faint positive (red, not just a white line) Also right after the test is complete, I hold the strip up to a bright light with the test side facing myself, shade my eyes with my hand. This gives a more finite look when wanting to really make sure. Mike

P.S. I also get major shakes and trembling after getting glutened. I hate it when this happens, scares me each time even though I know what it is causing it.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.