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Getting Up All The Time?

pturse

By pturse
in Related Issues & Disorders

Recommended Posts

pturse Apprentice
pturse
Posted

I was curious if anyone else had these problems . . . my sleep is constantly interrupted by me having to get up at least 5 times a night to use the rest room. It is horrible because I feel like I am never sleeping. I get up just fine and I survive the day just fine . . . sometimes I am really tired come 9:00 but normally can stay awake until 11:00.

Also, the other problem is the minute I lay down on my back or lay on my left side, my stomach/gut/intestine noises become loud and embarrassing. My husband just looks at me like I have terrible animals fighting in my gut. I constantly go to bed feeling bloated and/or stuffed like I ate too much (which is true sometimes). I am gaining more weight then I would like but I have decreased my amount of exercise and plan to change that soon.

Just curious if anyone experiences this.

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Melis Newbie
Melis
Posted

pturse

I also had that problem, getting up 3-5 times a night to use the restroom. My doctor suggested that this could be caused from other food intolerances and I have tried to really watch my diet besides gluten. I basically have tried to exclude nuts, dairy, corn and gluten and I have stopped getting up at night. This is the first time in years that I have not gotten up to go to the restroom all night and it is great!!!! The other night I ate some popcorn without thinking and I was up half of the night. I also get night sweats and these have stopped unless I eat something I shouldn't.

Hope this helps!

Melissa

FreyaUSA Contributor
FreyaUSA
Posted

*sigh* Sounds like me over the last month. As of this last Monday (3 days) I've given up eating any grains at all (I think it's rice, but I'll check this in a week or so) and I'm being very careful with dairy (I'm only eating yogurt or a little cheese but with the cheese I'm taking a lactaid pill.) So far, I'm feeling much better, even in the daytime. Last night was the first time in weeks I haven't felt the need to take both a pseudophed and motrin before going to sleep and I almost slept through the night (up only twice.)

I'm going along with someone's idea that as we heal, the new intestinal linings are more sensitive and after a while these new problems will go away.

angel-jd1 Community Regular
angel-jd1
Posted

Pseudoephedrine (sudafed) can also be keeping you up at night most people either are made jittery by it or are made tired, you might be a person who gets jittery and can't sleep.......just something to think about.

-Jessica :rolleyes:

pturse Apprentice
pturse
Posted
  • Author

Thanks I already am dairy free for the most part because I am lactose intolerant. I can't seem to give up corn and rice though because I am also a vegetarian and w/o those staples, I would be miserable.

What seems to bother my stomach the most, believe it or not, are vegetables! All kinds. They flow right through and the gluten-free soy sauce seems to bother me too sometimes.

Although, I am thankful I slept through last night. Go figure!

strack2004 Rookie
strack2004
Posted

Hi! I have been gluten-free for 5 months now. My principal benefits have been better sleep and more energy. I still get up once a night, once in awhile twice if I drank water during the evening, eating fish will also do it sometimes. I have no trouble getting back to sleep or getting to sleep in the first place which I used to have. I am still working on other foods that may bother me. I am on the SCD diet, so am not eating rice, potatoes, yams, etc. Have been experimenting with kefir the past week, using lactase with it since I am also lactose intolerant. I suspect it is giving me trouble, though. I did enjoy the flavor!, but it's not worth it to mess up the holidays. I think the body has to get used to something like that, but this is not the time. The increased energy is a plus. I don't take even naps any more. Once in while I still get drowsy when reading or watching tv. but not as often as I used to. I find when watching reruns, that I recognize that I have seen the beginning, but the ending is brand new to me! Cheers, Ruth

plantime Contributor
plantime
Posted

Pseudoephedrin sure will keep you up at night! When I was on it for allergic congestion, I went almost two weeks with little and no sleep. I called the pharmacist and asked him about adverse reactions, since I had just started several new meds, and he told me to stop the pseudoephedrin immediately! It was an adverse reaction, and I can never take it again! Please do not rule out meds as causing some of your problems!

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    • knitty kitty
      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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