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Has Anyone Found That They Can Tolerate Gluten Again?

AliB

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AliB Enthusiast
AliB
Posted

I have been reading about Leaky Gut syndrome and how it can be implicated in Celiac. Has anyone found that after some time has elapsed and their gut has had a chance to heal, they can then tolerate some Gluten and/or Dairy?

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confusedks Enthusiast
confusedks
Posted

If you have Leaky Gut, and NOT celiac, you may be able to tolerate gluten again. There are a few members on this board who that has happened for.

But, if you have Celiac, you must NEVER EVER eat gluten again! It's just that simple!

The only issues is that you want to make sure that you have leaky gut, not Celiac if you're going to eat gluten later down the road. Celiac must be 100% ruled out (I don't even know if that's possible?!)

CarlaB Enthusiast
CarlaB
Posted

I was completely gluten intolerant, but did not have celiac disease. Now that my leaky gut and other health issues are resolved, I can eat gluten again with no problems. Before I was sensitive to the smallest amount of contamination. So, yes, it is possible.

However, NOT FOR A CELIAC!!! Sorry .....

Phyllis28 Apprentice
Phyllis28
Posted

If you have Celiac you will never ever be able to tolerate gluten. A Celiac's tolerance to dairy depends on each person. I tolerate dairy without any trouble. Some people have to temporarily take the dairy out of their diet when they go gluten free but are able to add it later as the intestines heal. Others have lactose or casien intolerances restricting or eliminating dairy from their diets permanently.

ravenwoodglass Mentor
ravenwoodglass
Posted

I have to agree if you are celiac gluten is always going to be a poison to you. There are times when folks are diagnosed and have healed and they may seem to be able to tolerate it again for a while. This is one of the reasons they used to think children grew out of celiac. I think it is called a 'honeymoon' period. It can take time for the antibody effects to make themselves known and a lot of damage can be done before we realize what is going on. Also the antibodies can choose to attack tissues other than just the gut so in some there could be serious neurological, glandular and joint damage before they think that celiac has come back. If you are celiac there is no going back to gluten.

tarnalberry Community Regular
tarnalberry
Posted

If you are celiac, you cannot ever have gluten. Gliadin, horedin, and secalin have sections in them recognized by the immune system in the intestines which cause the creation of other molecules that attack the intestines (the autoimmune reaction). That's just how celiacs are chemically 'wired', thanks to genetics that codes up our immune system. Nothing will change that. (Nothing short of genetic therapy.)

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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