Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Being gluten-free In Las Vegas


MegHaligh

Recommended Posts

MegHaligh Newbie

I just moved to Las Vegas from Indiana late last September. So far I'm loving it, but getting together a support group would be awesome. I visualize dinners at safe restaraunts and gluten-free potlucks, so I'm really hoping that there's a few of us lurking in the area.

My boyfriend of over a year was diagnosed with Celiac a number of years ago, and - while researching things about it for him recently - I've decided that I'm going to try a similar diet to see if it makes me feel better. It was amazing (and, honestly, a little bit of a relief) reading down the lists of symptoms and whatnot you guys have. I'm hoping that it'll make a difference. Also, now that we're living together I'm frightened that I'm accidently poisoning him just by eating things with gluten in them around him.

I'm 21 years old and he's 23, and would love to meet anyone and everyone in the area that's interested. :)

-Meg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



b91hd7fjk Apprentice

Hi Meg,

My name is Staci and I too live in Las Vegas, originally from Ohio. I have been diagnosed for almost 3 years now and have been looking to get involved with the support group here...there is one but getting a hold of them is next to impossible. I am 21 and my boyfriend is 30. He is able to eat gluten but is also (like you) very respectful of my disease. We have been talking a lot about moving in together but I dont know if he really understand what kind of commitment that would be....anyways, I live down by the south point and work at the forum shopps in ceasars. Because I work retail and my boyfriend works at Green Valley Ranch on the night shift our schedules are a little crazy. However, I would love to get together for dinner and compile a group for potlucks!

I am also in a desperate search for a Celiac Disease Specialist here in town...if you guys have found someone good please please let me know. Ok, bye for now! So glad I found you!!

-Staci

angel-jd1 Community Regular

Do a search for Broncobux (Chris), he's a member here on the boards. He lives in vegas, is your age group and has wonderful suggestions for places to eat and how to get the service you need out there!!! Good luck!

-Jessica

MegHaligh Newbie

-Staci

We're actually in the midst of finding doctors at the moment as well. My boyfriend, Mike, does want me to make sure you avoid a gastro named Dr. Fayadh for a number of reasons. After having him for upwards 6 months, barely any progress was made at all. Also, his bedside manner is absolutely atrocious. He had some very scary episodes back when he was in the process of being diagnosed and it seemed like his doctor didn't care at all. When he prescribed Mike penicillin - which he's allergic to, and had made sure the doctor was aware when he first went to him - he knew he had to find a new doctor. We'll keep you posted on our search and you make sure to do likewise. ^^

We're located pretty much at the opposite side of town, it seems like. I work at the Santa Fe and he works at a restaraunt off of Lake Mead and Rainbow. We'll see what we can figure out about meet ups and whatnot, but just knowing someone here that's going through the same things as we are is going to be awesome I think.

Also thanks for the information, Jessica! ^^

-Meg

  • 1 month later...
VegasCeliacBuckeye Collaborator

Sorry it took me so long to post, let me know if you need any help in Vegas.

I have lived here for the last 4 years and can give decent advice on where to eat.

email me for access to the list serve in town

broncobux2000@yahoo.com

Chris

  • 5 months later...
LVsupportGroupLeader Rookie

There is a local LV support group. My signature is the website for it. We have a Pei Wei gluten-free event tomorrow 9/6/08 at 1311 Sunset Henderson, NV 10:00am to 11:00 am. A great Primary care physician is Michelle Conger (you can google her for info she is inside of Spring Valley Hospital), and a great GI is Dr. Vish Sharma at Great West Medical Associates. He is very knowledgeable about celiac disease. His address is 5915 S Rainbow Blvd #105 LV NV 89118 phone 702-220-9865. Hope this helps!

  • 3 months later...
nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.