Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain Pain Pain....

Jodi Mills

By Jodi Mills
in Coping with Celiac Disease

Recommended Posts

Jodi Mills Apprentice
Jodi Mills
Posted

Okay so I know ya'll suggested to cut soy and dairy out right away, but I have opted to wait till we get to arizona, just because most of the snack foods I have found that are gluten free either have soy or dairy, or both. and since we will be driving, i do need the few options for snack food available.

I know that was off subject, but today I have switched my diet up a little. Normally I start the day with a slimfast(breakfast makes me sick, but I can do the slimfast and not get sick) the i snack on about 3 rice cakes between 10-1 at one i go on lunch and will eat a bowl of rice, or some apple sauce, or fruit cups or something like that, then a gluten free meal for dinner,

today i had my usual slimfast, instead of rice cakes, i decided to have a sliced apple for my mid morning snack, had a bowl of rice for lunch, and now here i sit, in pain, my stomach feels like someone is twisting it in knots...I think it has to be the apple, it is the only thing that has changed.

on to another subject, I think there is something seriously wrong with me, and I am wondering if anyone feels the same way. since going gluten free I have lost about 10 lbs, bringing me to an ideal weight of 130lbs, i am 5'6. so the question is does anyone else look in the mirror, when they are at an ideal weight and just get disgusted by what they see?

everytime I look at my self i just feel gross and fat...and i know by all means 130 is getting into the range of too skinny for me...i just dont get it...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
on to another subject, I think there is something seriously wrong with me, and I am wondering if anyone feels the same way. since going gluten free I have lost about 10 lbs, bringing me to an ideal weight of 130lbs, i am 5'6. so the question is does anyone else look in the mirror, when they are at an ideal weight and just get disgusted by what they see?

everytime I look at my self i just feel gross and fat...and i know by all means 130 is getting into the range of too skinny for me...i just dont get it...

Hmmm.... I would say you need to be very careful about what thoughts your brain is throwing at you right now. You're going through a transitional period and it's easy to beat yourself up about anything and everything. I personally am 5'7", 140lbs. This is my ideal weight, and I probably look exactly like you, because I figure 10 lbs for every inch after 5'5'' is appropriate-ish. For a long time before gluten-free, I was between 105 and 115, and couldn't break the 120 barrier. It was very frustrating for me, and I'd been trying to gain weight for a long time, and we had an actual celebration with cake when I hit 140lbs. I didn't enjoy being the 'oh-so-skinny' girl, because in case you haven't noticed, most guys don't actually like that. Even with all of that, I still find myself thinking these insidious little thoughts sometimes about how my (tiny) belly pudge is bad or how my butt's getting too big. WE ARE BEING BRAINWASHED. If you would like a really good confidence builder, go watch Alicia Key's 'No One' music video. She is an extremely confident, extremely hot, extremely CURVY woman who obviously is happy with herself, and so are 95% of the men in our country, as evidenced by the over 2 million viewings of that video. If you want, I can email you a picture of myself, and you can put it next to a picture of you and write under them, "WE ARE HOT!!!" If that still doesn't do it, buy yourself some hot lingerie and dance around the bedroom for your boyfriend and let his reaction tell you how hot you are.

As for your belly pain, if applesauce doesn't bother you I wouldnt guess a straight apple would, but try laying off for a week and then eat another apple and see what happens. Applesauce is usually cooked at least somewhat, so raw apples might be too rough for your belly right now.

Jodi Mills Apprentice
Jodi Mills
Posted
  • Author
If you want, I can email you a picture of myself, and you can put it next to a picture of you and write under them, "WE ARE HOT!!!" If that still doesn't do it, buy yourself some hot lingerie and dance around the bedroom for your boyfriend and let his reaction tell you how hot you are.

As for your belly pain, if applesauce doesn't bother you I wouldnt guess a straight apple would, but try laying off for a week and then eat another apple and see what happens. Applesauce is usually cooked at least somewhat, so raw apples might be too rough for your belly right now.

That is funny, I think he would fall off his rocker if i danced around in lingerie...lol He is not into buying it, cuz its too expensive to just sit on the floor...lol I know alot of the time when i do feel that i am "fat" i go and look at some pictures of when i was in the 110-115 category, (a lil less than a year ago) and can see why my whole family thought i was on some serious drugs. and that helps.

I dont know why the apple would be the thing bothering, but it is the only change in the diet. so i am going to cut it out and see what happens. i just get tired of eating the same thing everyday, but it seems like everytime i switch something, i end up in pain....i am seriously considering going home....but i only have an hour left....

JNBunnie1 Community Regular
JNBunnie1
Posted
That is funny, I think he would fall off his rocker if i danced around in lingerie...lol He is not into buying it, cuz its too expensive to just sit on the floor...lol I know alot of the time when i do feel that i am "fat" i go and look at some pictures of when i was in the 110-115 category, (a lil less than a year ago) and can see why my whole family thought i was on some serious drugs. and that helps.

I dont know why the apple would be the thing bothering, but it is the only change in the diet. so i am going to cut it out and see what happens. i just get tired of eating the same thing everyday, but it seems like everytime i switch something, i end up in pain....i am seriously considering going home....but i only have an hour left....

That's a good trick with the pictures, helps remind you how awful it felt to not be able to gain weight. I was actually shocked when I saw a picture of myself on my 20th birthday, my butt was nonexistant!

So no lingerie? Dance around naked! Watch a couple Shakira videos and practice til you get a couple moves down, basically just gotta shake your butt and wave your arms around. He'll love it. Well, mine does......

(Are we allowed to talk about this stuff?....)

ravenwoodglass Mentor
ravenwoodglass
Posted

I wanted to add just a quick note about apples. Most are coated with a lacto resin to help keep them fresh. IF you are sensitive to lactose you may react to the apple coating. If you are not dairy sensitive then the peels may just be too much for your system to digest. When your up to it you might want to experiment and see if they are more digestable if you peel them.

Jodi Mills Apprentice
Jodi Mills
Posted
  • Author
So no lingerie? Dance around naked! Watch a couple Shakira videos and practice til you get a couple moves down, basically just gotta shake your butt and wave your arms around. He'll love it. Well, mine does......

(Are we allowed to talk about this stuff?....)

I have no idea!!!lol I am actually an okay dancer..lol I love shakira, the way she can move is amazing..lol, my sis and me used to get together and I would teach her how to isolate her hips from her upper half and stuff. So I am going to a passion party this weekend, and maybe with that I will get the courage to dance around for him...lol I am so self concious, it drives me nuts...lol

Ravenwood:

That is a good idea, my bf says i should give it another try too, but i will wait a few days, and see how things go. and i will peel them first and only eat a slice or two at first, until i see how it affects me...

moon-gypsy Newbie
moon-gypsy
Posted

First, about the apple. . .I find that when I eat raw fruit--especially apples or citrus--on an empty (or nearly empty) stomach, that I'm tied up in cramps almost immediately. But if I eat it with a good cushion of something else, no problems. I thought it might be the acid in the fruit, but who knows. You might want to try eating one at the end of a meal and see if that helps or not.

Secondly, about your self-image. . .this is what helps me when I get a little nuts about myself. If you watch daytime TV, stop. Seeing commercials about the next miracle diet plan or fitness equipment will make anyone feel fat and out of shape. Same thing goes for all those women's magazines whose headlines scream, "Lose 10 pounds fast!" right next to the cover photo of a giant chocolate cake. When that little voice in your head tells you that you are fat, argue with it, out loud if possible. It feels stupid, but it helps. Every day, try to think of at least one thing that you like about your body, no matter how trivial. I also find that just a little bit of exercise (15 minutes of yoga, or a walk around the block) helps my mood and my energy. Of course, I'm terrible about exercise, I only get religious about it when I start feeling REALLY bad! :P

By the way, how long did it take you to start gaining weight again? I've been gluten-free for almost 5 months, and I don't think I've gained yet, but I'm hopeful.

-D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jodi Mills Apprentice
Jodi Mills
Posted
  • Author
First, about the apple. . .I find that when I eat raw fruit--especially apples or citrus--on an empty (or nearly empty) stomach, that I'm tied up in cramps almost immediately. But if I eat it with a good cushion of something else, no problems. I thought it might be the acid in the fruit, but who knows. You might want to try eating one at the end of a meal and see if that helps or not.

By the way, how long did it take you to start gaining weight again? I've been gluten-free for almost 5 months, and I don't think I've gained yet, but I'm hopeful.

-D

Going to try the apple cushion, i was on an empty stomach when i ate it, so that could be the problem. as for the weight gain....well i havent gained any since going gluten free I have actually dropped 10 lbs, thats why i dont understand this image thing...maybe its because i am still bloated feeling or whatever. I am going to start walking when i get home from work, maybe that will help. I am so religious about "not" working out...I dont think i have ever really worked out...and maybe that too is part of the problem.

I am def. happy being 130, if i lose too much more weight I will look like a person who uses drugs...seriously its kinda gross. before going gluten free(the second time) I had problems keeping my wieght steady, I would go from 145(age 17-19) then dropped to 115(19-20) then back up to 145, then down and up and down and up. I was back about 140-145 when I went gluten free this time, and have dropped down to 130. and the last 7 lbs were in the last 2 weeks or so..I weigh myself weekly, just to see.

I def. dont want to gain weight, but I also do not want to lose anymore....

sunflower53072 Newbie
sunflower53072
Posted

I think some types of Slim fast like the Optima may not be gluten free. I read the only one that is guaranteed gluten free is the kind labeled easy to digest and it says gluten free on the label.

JNBunnie1 Community Regular
JNBunnie1
Posted
Secondly, about your self-image. . .this is what helps me when I get a little nuts about myself. If you watch daytime TV, stop. Seeing commercials about the next miracle diet plan or fitness equipment will make anyone feel fat and out of shape. Same thing goes for all those women's magazines whose headlines scream, "Lose 10 pounds fast!" right next to the cover photo of a giant chocolate cake. When that little voice in your head tells you that you are fat, argue with it, out loud if possible. It feels stupid, but it helps. Every day, try to think of at least one thing that you like about your body, no matter how trivial. I also find that just a little bit of exercise (15 minutes of yoga, or a walk around the block) helps my mood and my energy. Of course, I'm terrible about exercise, I only get religious about it when I start feeling REALLY bad! :P

By the way, how long did it take you to start gaining weight again? I've been gluten-free for almost 5 months, and I don't think I've gained yet, but I'm hopeful.

-D

Those are good ideas for everyone. I personally gained a few pounds within six months of gluten free, but only gained the other extra 15 I needed over a year later.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    2. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    3. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.