Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis - Candida


Ken70

Recommended Posts

Ken70 Apprentice

I've never considered gluten intolerance to be a big issue. If I can't eat gluten so be it.

I haven't been feeling 100% so I went to a functional medicine specialist. He ran blood, saliva and urine tests to assess my overall health.

I've been gluten free (or so I thought) since June. My IGA results were just below the level that qualifies as Celiac. How can this be after 8 months. I know it's probably from soy that I occassionally have with sushi and possiblly some cross contamination problems. With my D gone I thought I didn't have to be that careful. I guess I will have to be 100% gluten-free now.

The biggest issue is that I have a BIG problem with candida and my mucosal barrier is compromised. The doctor is going to recommend a specific diet devoid of almost everything including some of my mainstays, eggs, bacon, fruit. He will also have me on some suppplements or "supports" as he calls them. He's British I think.

My rant is that I'm not sure there is as simple a fix to candida as there is to gluten intolerance. How will I know that the candida is gone without getting retested. It seems overwhelming.

My even bigger concern is that I have twin 9 month olds. They and my wife have suffered through thrush several times. We just made the connection tonight that these are all the part of candida and we are probably passing it around to eachother.

I'm concerned about this because there is plenty of research that points towards candida as one possible cause of autism. How do I protect them from this? They are absolutely not showing any signs of Autism at the present time. Quite the opposite actually.

I guess I'm just pissed off that now I have to fret over a problem that affects more than just me and I'm not sure if it can be as easily fixed as simply not eating gluten.

Thanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Ken, I am sorry that you now have to deal with this. But at least you have an answer to your problems, and your family's problems.

Are your twins still breastfed? I guess your wife will need to be on the candida diet together with you. You will all need probiotics (you can get infant probiotics to be mixed into either formula or breast milk), to get your good bacteria back up to where they keep the bad ones in check.

Obviously, you all need to stop eating food containing yeast and sugar, and limit starches and fruit. It won't be forever, just until you are all well.

I have NO clue why you need to be off eggs for the candida diet, I've never heard of that. I personally think it's nonsense (somebody correct me if I'm wrong).

But you definitely need to be 100% strict with the gluten-free diet!

psipsina Rookie

There is a support thread for the candida diet in the "other intolerances" part of this website that has tons and tons of info. It can be very frustrating to face even more restrictions but it is sooooooo worth it when you finally get those buggers under control.

aprilh Apprentice

I have candida as well and hey, maybe you won't have to be gluten free forever! That might be the bright side of it.

I couldn't tolerate gluten at the beginning of my candida journey and now I can in small doses.

A good quality probiotic like Natren or Healthy Trinity for you and the family should be a good start. Definately start the babies one specific for infants, for they need different strains than adults. The adult strains won't hurt them, its just not in the right order and may not work as well.

Since they are babies, you don't have to worry so much about them going on a "sugar free" diet so this might be a good time to do this diet.

The candida diet is not so bad, you just gotta eat really healthy avoiding sugars, high carb fruits, potatoes, and moldy foods. I didn't find it to bad to follow. And when you are feeling a bit better add some antifungals to the mix.

Join us over on the "candida thread" under leaky gut issues.

Oh, and once you get leaky gut healed you will feel a ton better!

Ken70 Apprentice
I have candida as well and hey, maybe you won't have to be gluten free forever! That might be the bright side of it.

I couldn't tolerate gluten at the beginning of my candida journey and now I can in small doses.

A good quality probiotic like Natren or Healthy Trinity for you and the family should be a good start. Definately start the babies one specific for infants, for they need different strains than adults. The adult strains won't hurt them, its just not in the right order and may not work as well.

Since they are babies, you don't have to worry so much about them going on a "sugar free" diet so this might be a good time to do this diet.

The candida diet is not so bad, you just gotta eat really healthy avoiding sugars, high carb fruits, potatoes, and moldy foods. I didn't find it to bad to follow. And when you are feeling a bit better add some antifungals to the mix.

Join us over on the "candida thread" under leaky gut issues.

Oh, and once you get leaky gut healed you will feel a ton better!

Thanks for your replies. For some reason this has stressed me out big time. I found the candida thread and have been trying to plow through the 18 plus pages :blink: . Interesting that you said that about gluten as the FM guy told me the same thing. I can't even imagine eating it again as I no longer think of it as food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.