Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis - Candida


Ken70

Recommended Posts

Ken70 Apprentice

I've never considered gluten intolerance to be a big issue. If I can't eat gluten so be it.

I haven't been feeling 100% so I went to a functional medicine specialist. He ran blood, saliva and urine tests to assess my overall health.

I've been gluten free (or so I thought) since June. My IGA results were just below the level that qualifies as Celiac. How can this be after 8 months. I know it's probably from soy that I occassionally have with sushi and possiblly some cross contamination problems. With my D gone I thought I didn't have to be that careful. I guess I will have to be 100% gluten-free now.

The biggest issue is that I have a BIG problem with candida and my mucosal barrier is compromised. The doctor is going to recommend a specific diet devoid of almost everything including some of my mainstays, eggs, bacon, fruit. He will also have me on some suppplements or "supports" as he calls them. He's British I think.

My rant is that I'm not sure there is as simple a fix to candida as there is to gluten intolerance. How will I know that the candida is gone without getting retested. It seems overwhelming.

My even bigger concern is that I have twin 9 month olds. They and my wife have suffered through thrush several times. We just made the connection tonight that these are all the part of candida and we are probably passing it around to eachother.

I'm concerned about this because there is plenty of research that points towards candida as one possible cause of autism. How do I protect them from this? They are absolutely not showing any signs of Autism at the present time. Quite the opposite actually.

I guess I'm just pissed off that now I have to fret over a problem that affects more than just me and I'm not sure if it can be as easily fixed as simply not eating gluten.

Thanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Ken, I am sorry that you now have to deal with this. But at least you have an answer to your problems, and your family's problems.

Are your twins still breastfed? I guess your wife will need to be on the candida diet together with you. You will all need probiotics (you can get infant probiotics to be mixed into either formula or breast milk), to get your good bacteria back up to where they keep the bad ones in check.

Obviously, you all need to stop eating food containing yeast and sugar, and limit starches and fruit. It won't be forever, just until you are all well.

I have NO clue why you need to be off eggs for the candida diet, I've never heard of that. I personally think it's nonsense (somebody correct me if I'm wrong).

But you definitely need to be 100% strict with the gluten-free diet!

psipsina Rookie

There is a support thread for the candida diet in the "other intolerances" part of this website that has tons and tons of info. It can be very frustrating to face even more restrictions but it is sooooooo worth it when you finally get those buggers under control.

aprilh Apprentice

I have candida as well and hey, maybe you won't have to be gluten free forever! That might be the bright side of it.

I couldn't tolerate gluten at the beginning of my candida journey and now I can in small doses.

A good quality probiotic like Natren or Healthy Trinity for you and the family should be a good start. Definately start the babies one specific for infants, for they need different strains than adults. The adult strains won't hurt them, its just not in the right order and may not work as well.

Since they are babies, you don't have to worry so much about them going on a "sugar free" diet so this might be a good time to do this diet.

The candida diet is not so bad, you just gotta eat really healthy avoiding sugars, high carb fruits, potatoes, and moldy foods. I didn't find it to bad to follow. And when you are feeling a bit better add some antifungals to the mix.

Join us over on the "candida thread" under leaky gut issues.

Oh, and once you get leaky gut healed you will feel a ton better!

Ken70 Apprentice
I have candida as well and hey, maybe you won't have to be gluten free forever! That might be the bright side of it.

I couldn't tolerate gluten at the beginning of my candida journey and now I can in small doses.

A good quality probiotic like Natren or Healthy Trinity for you and the family should be a good start. Definately start the babies one specific for infants, for they need different strains than adults. The adult strains won't hurt them, its just not in the right order and may not work as well.

Since they are babies, you don't have to worry so much about them going on a "sugar free" diet so this might be a good time to do this diet.

The candida diet is not so bad, you just gotta eat really healthy avoiding sugars, high carb fruits, potatoes, and moldy foods. I didn't find it to bad to follow. And when you are feeling a bit better add some antifungals to the mix.

Join us over on the "candida thread" under leaky gut issues.

Oh, and once you get leaky gut healed you will feel a ton better!

Thanks for your replies. For some reason this has stressed me out big time. I found the candida thread and have been trying to plow through the 18 plus pages :blink: . Interesting that you said that about gluten as the FM guy told me the same thing. I can't even imagine eating it again as I no longer think of it as food.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.