Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Candida And Die Off?

Ken70

By Ken70
in Food Intolerance & Leaky Gut

Recommended Posts

Ken70 Apprentice
Ken70
Posted

Hello All,

I'm hoping I'm looking at the real mountain top. I've climbed alot of peaks in the past year only to look beyond to a new peak.

I am curious what your theories are on die off. I think I've had it happen 5 seperate times in the past year. Most recently last night. Last night was the first time I was aware that what I was experiencing was probably die off.

I've had it happen randomly as well as from a detox diet. Any ideas why the random die offs might occur. I'm wondering if my immune system simply reacted to a dangerous state of imbalance or if I ate something that was anti fungal, hasn't been eating sugar for a few days etc.

I would also like to know how many days after the die off can I expect to start feeling well again and what I can do to speed the process. I've looked through the candida thread but 19 pages is more daunting than facing food intolerances :rolleyes:

Thanks

Ken

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

First, from my own experience, the die-off seems to occur over a period of time, not all at once. For me it took a while, but about two or three weeks into it, I was feeling an incredible amount better. I started by avoiding all sugars and yeasts, and after a week or two it was obviously working. So I then started taking caprylic acid, which was probably the best thing of all. Every day seemed to be a new high in wellbeing. I continued the caprylic acid for a few months I think. It was maybe two bottles worth, as I recall.

I did refrain from fruit too, as well as things like vinegar, or anything that might feed the yeasty beasties. It actually took years before I could tolerate more than one piece of fruit in a given week.

Now, I use Stevia in place of sugar, and I don't notice any problems with fruits, though I don't go overboard with it. I don't care to take that sort of chance. I haven't eaten yeast since, and I don't know if I ever will take that gamble. I have enough issues to deal with, without that added to it.

Hope that helps!

aprilh Apprentice
aprilh
Posted

Hi Ken,

I think die off can be different for everyone. What kind of symptoms were you feeling when this happened. Had you started the candida diet or eat anything antifungal like garlic?

Some really bad candida sufferers get die off with just avoiding the problem foods like sugar and carbs.

Drink lots of lemon water and do a detox bath if you are feeling bad. This assists the body with the toxins which is what die off is from.

And hey, join us over there on the candida page... you don't have to read the back 19 to catch up!!

APril

Ken70 Apprentice
Ken70
Posted
  • Author
Hi Ken,

I think die off can be different for everyone. What kind of symptoms were you feeling when this happened. Had you started the candida diet or eat anything antifungal like garlic?

Some really bad candida sufferers get die off with just avoiding the problem foods like sugar and carbs.

Drink lots of lemon water and do a detox bath if you are feeling bad. This assists the body with the toxins which is what die off is from.

And hey, join us over there on the candida page... you don't have to read the back 19 to catch up!!

APril

Hey all,

Thanks for the replies. I was feeling fatigue and brain fog for a while. I knew there was something more than gluten going on because I have been pretty strict with the exception of soy sauce at sushi.

My diet was heavy in fruits and vegetables. I made salad dressing every night which always contained lots of vinegar, usually rice wine which is the sweetest form. I always had garlic and mustard in it but apparently this wasn't enough anti fungal.

I started Friday morning with no fruits, no vinegar no anything diet. Meat and brown rice and leafy greens along with whole cashews is what my doctor has recommended. The diet he has me on is more than about the candida, more on that later maybe.

The die off cam about 12 hours later and was severe. I have experienced this 5 times in the past year and one other time 20 years ago that I can remember. I came back from a ski trip by bus during high school. They gave us bag lunches and they contained a chocolate covered coconut bar. It was the first and last time I've eaten coconut because I was certain I had an allergic reaction to it. Looking back I think it was a severe die off. It was exactly the same as those I've had this year. So maybe I've had this for a long time and coconut is really just anti fungal. MY doctor has it on my list of approved foods. I may try some later today.

Headaches have been severe but the lemon water and epsom salt baths and the cayenne pepper tincture drops I have from a previous detox are helping I think.

RiceGuy Collaborator
RiceGuy
Posted

Yes, coconut can be anti-fungal, simply because of the caprylic acid in coconut oil. But, if that's what it was, the capsules would again be my suggestions, especially since coconut (especially the oil) is so expensive.

Ken70 Apprentice
Ken70
Posted
  • Author
Yes, coconut can be anti-fungal, simply because of the caprylic acid in coconut oil. But, if that's what it was, the capsules would again be my suggestions, especially since coconut (especially the oil) is so expensive.

Is this found at a GNC or other health food store? What do I look for?

Thanks

RiceGuy Collaborator
RiceGuy
Posted
Is this found at a GNC or other health food store? What do I look for?

Thanks

You should be able to find caprylic acid capsules at any decent health food store/vitamin shop. Do be sure they are gluten-free of course.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aprilh Apprentice
aprilh
Posted

They do sell caprylic acid at the HFS. However I have read that this particular way is hard on the liver and does not do as good a job as liquid caprylic acid (caproil). I read that here www.wholeapproach.com. They mix the caproil with psyllium husks fiber. This is supposed to bypass the liver and the pysllium works as a "scrubber" in the intestines and the caproil kills the yeast as the psyllium scrubs it out of the gut walls. The yeast can be very tricky and can hide in the crevaces in the intestines.

I try to use coconut oil when possible, it does not create die off for me. That might be because I have been at this a while! I also add coconut milk to soups and use it in cooking. Its YUM and good for you!

Other antifungals are:

fresh raw garlic

pau d'arco tea

Iodine

oil of oregano

olive leaf

Maybe your doc wants you to deal with the diet first and introduce antifungals later????

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.