Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Allergy Knowledge Mining


greendog

Recommended Posts

greendog Apprentice

I'm 63 years old and I've worked in Healthcare Insurer Information Techology for the past 35 years. I spent 13 years in Management but the bulk of my time has been spent in the data collection, analysis and presentation space; (data base design and administration, business intelligence and knowledge management) I'm not a Celiac but cannot tolerate most forms of gluten. For instance a few crumbs of wheat bread gives me cramps, diarrea and fatigue, but I can drink some Lite Beers. Some forms of gluten seem to mess with my head and joints and others mess with my GI track. I am also allergic (or intolerant) to yeast, olives, broccoli, molds, and mites.

Seems to me that we have a lot of valuable raw data on this site and on the internet related to Celiacs Disease, Gluten Allergy and Gluten Intolerance. I say data, because in my field unless data has acted upon we can't really call it information. The rule is, if data is acted upon it becomes information, and if information is acted upon it becomes knowledge. So the question becomes, how do we take the raw data we have and store it in a manner that it can be acted upon so that it ultimately becomes knowledge. Like we create something like a SQL database that a Celic.com site member can query. Something like show me a list of all the members who have symptoms related to weight gain, irritable bowel syndrome, hair loss, fatigue, etc. and bam the list appears. And to add to the query, the member could say also show me the doctors they visited and the treatments and the success rates. Probably just a pipe dream, but I've been a Problem Solver almost all my life and this seems like a nice challenge for a grand cause.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,155
    • Most Online (within 30 mins)
      7,748

    Jodie W
    Newest Member
    Jodie W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if...
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...