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Celiac And Allergy Knowledge Mining


greendog

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greendog Apprentice

I'm 63 years old and I've worked in Healthcare Insurer Information Techology for the past 35 years. I spent 13 years in Management but the bulk of my time has been spent in the data collection, analysis and presentation space; (data base design and administration, business intelligence and knowledge management) I'm not a Celiac but cannot tolerate most forms of gluten. For instance a few crumbs of wheat bread gives me cramps, diarrea and fatigue, but I can drink some Lite Beers. Some forms of gluten seem to mess with my head and joints and others mess with my GI track. I am also allergic (or intolerant) to yeast, olives, broccoli, molds, and mites.

Seems to me that we have a lot of valuable raw data on this site and on the internet related to Celiacs Disease, Gluten Allergy and Gluten Intolerance. I say data, because in my field unless data has acted upon we can't really call it information. The rule is, if data is acted upon it becomes information, and if information is acted upon it becomes knowledge. So the question becomes, how do we take the raw data we have and store it in a manner that it can be acted upon so that it ultimately becomes knowledge. Like we create something like a SQL database that a Celic.com site member can query. Something like show me a list of all the members who have symptoms related to weight gain, irritable bowel syndrome, hair loss, fatigue, etc. and bam the list appears. And to add to the query, the member could say also show me the doctors they visited and the treatments and the success rates. Probably just a pipe dream, but I've been a Problem Solver almost all my life and this seems like a nice challenge for a grand cause.


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    • Bronwyn W
      Thank you 😊 I will certainly have those tests done to be thorough although bright red color indicates lower down.  This information is very interesting,  Thank you so much 🙏🏻 
    • trents
      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
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