Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mama And Baby Both Celiac

veggiemama

Recommended Posts

veggiemama Rookie
veggiemama
Posted

Hi,

I just wanted to introduce myself. I found out recently (within the past week) that my daughter and I are both celiac. She is almost 12 months old. She has had rashes basically since she was born. She is breastfeed, and I found out that wheat bothered her through my milk when I would eat wheat but I never thought it could be celiac. I did not know much about it.

Before knowing that we were celiac, I stopped eating wheat but then I started eating it again and her rashes came back. Again -- I never really thought more into it other than "oh she must just be sensitive to wheat right now"

All my life I have had digestive problems and I knew that eating wheat in particular really aggravated my stomach from time to time. I actually went wheat-free and sugar-free for a long time (I'm vegan) and felt better. But during the pregnancy is really when I started having problems. My midwife wanted me to eat "protein protein protein!" so I added wheat to my diet again. I ate bagels, sandwiches... not to mention other gluten containing grains.

After the birth, my stomach problems got even worse. I felt nauseated lot but I did not know why. Recently, I got food poisoning which was awful and when I started feeling better and was able to eat again, I started eating rye bread sandwiches, spelt pretzels and wheat crackers (before I knew I was celiac obviously) and I started to feel bad again. Now my stomach is so aggravated I can hardly eat without feeling nauseated and having stomach pain. Its probably been about 3-4 weeks since I've had gluten. Shouldn't I start feeling better? I've been living on potatoes. My next approach is drinking fresh raw juices because I know they heal the digestive tract.

I'm off all grains even ones that do not contain gluten, soy and all nuts. However, this is not a problem to me since I am not able to eat much of anything at the moment.

Any thoughts or suggestions will be much appreciated :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ItchyMeredith Contributor
ItchyMeredith
Posted

Welcome! You came to the right place. This board is an amazing hub of celiac information. I have learned so much in my 8 months here. I too am a vegetarian celiac. I believe mine turned on during my first pregnancy but I only found out in June. We are trying to find out if my oldest is celiac too. Just curious- how did your baby get her diagnosis? It is wonderful that you found a doctor who was able to get to the bottom of this. Many parents struggle for years to find the answer.

My advice to a new veggie celiac is to:

1) Read everything you can about celiac and arm yourself with information. After reading just a couple of books you may find that you know more about celiac than your family doctor. 2) Also- stay active on here and feel free to ask questions. BabyCenter.com also has a board for parents of kids with food allergies. Celiac is not an allergy but that is where the celiac mommies go too. There is also a board called Vegiac for vegetarian/vegan celiacs. Open Original Shared Link 3)Get a few cookbooks. My favorites are The Gluten-Free Vegetarian Kitchen by Donna Klein, and The Gluten-Free Vegan by Susan O'Brian. I got both of these on Amazon.

Good luck with everything! You and your baby will be fine once you get adjusted to the diet. Message me if you have any more questions.

Mere

dandelionmom Enthusiast
dandelionmom
Posted

I was going to suggest cutting out dairy then I realized you're vegan so that doesn't help! I wonder if you need to go back to the doctor for allergy testing to see if you're allergic to any of the foods you're eating.

I ditto the suggestion to check out the Vegiac site. I'm a vegetarian with celiac and it gets hard to think of what to eat sometimes!

veggiemama Rookie
veggiemama
Posted
  • Author

Thanks for all your suggestions.

Is there anything that may be good to put topically on my daughters rashes until they clear up? She reacted to the gluten in my breastmilk when I was eating gluten-containing foods. She itches the rashes.... I have heard of putting diluted apple cider vinegar on the rash (as well as putting some in her bath). That seems to be helping.

missy'smom Collaborator
missy'smom
Posted

There is a skin condition associated with celiac disease called dermatitis herpetiformus(sp?) that is itchy. There is a cream they can prescribe for it. You can read about it here at the Celiac Sprue Association website.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.