Symptoms... Recovery Time?

[veggiemama]

Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

Here is a snippet from my other post..

"

All my life I have had digestive problems and I knew that eating wheat in particular really aggravated my stomach from time to time. I actually went wheat-free and sugar-free for a long time (I'm vegan) and felt better. But during the pregnancy is really when I started having problems. My midwife wanted me to eat "protein protein protein!" so I added wheat to my diet again. I ate bagels, sandwiches... not to mention other gluten containing grains.

After the birth, my stomach problems got even worse. I felt nauseated lot but I did not know why. Recently, I got food poisoning which was awful and when I started feeling better and was able to eat again, I started eating rye bread sandwiches, spelt pretzels and wheat crackers (before I knew I was celiac obviously) and I started to feel bad again. Now my stomach is so aggravated I can hardly eat without feeling nauseated and having stomach pain. Its probably been about 3-4 weeks since I've had gluten. Shouldn't I start feeling better? I've been living on potatoes. My next approach is drinking fresh raw juices because I know they heal the digestive tract.

"

I know everyone is different too. I was just hoping to maybe be able to connect with other people and find out how they felt, etc... Thanks

[Gwen B]

Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

Here is a snippet from my other post..

"

All my life I have had digestive problems and I knew that eating wheat in particular really aggravated my stomach from time to time. I actually went wheat-free and sugar-free for a long time (I'm vegan) and felt better. But during the pregnancy is really when I started having problems. My midwife wanted me to eat "protein protein protein!" so I added wheat to my diet again. I ate bagels, sandwiches... not to mention other gluten containing grains.

After the birth, my stomach problems got even worse. I felt nauseated lot but I did not know why. Recently, I got food poisoning which was awful and when I started feeling better and was able to eat again, I started eating rye bread sandwiches, spelt pretzels and wheat crackers (before I knew I was celiac obviously) and I started to feel bad again. Now my stomach is so aggravated I can hardly eat without feeling nauseated and having stomach pain. Its probably been about 3-4 weeks since I've had gluten. Shouldn't I start feeling better? I've been living on potatoes. My next approach is drinking fresh raw juices because I know they heal the digestive tract.

"

I know everyone is different too. I was just hoping to maybe be able to connect with other people and find out how they felt, etc... Thanks

Are you still eating dairy and soy? I got nausea and stomach pain just like I did with gluten a couple of weeks into the gluten-free diet although I had not noticed a problem before. I went lactose free but cassein also gave me a bad feeling in the gut although not as bad nausea. Soy also now has a similar effect on me, gas, nausea.

Some people on this forum have had to give up nightshades also and even grains (not sure if potatoes count as in the nightshade family). I am avoiding Tapioca in gluten-free products and just trying to eat foods that are naturally gluten-free as much as possible. Juices may be healing but you may find the high acidity just flushes the nutrients straight through you. I have not been able to eat much raw stuff, because of this but I can now (31/2 months) eat salads and a couple of pieces of fruit, oranges are better than apple for some reason. Pears are good, banana too.

Check out supplements too, are they gluten-free. I can't even take tabs that have vit E in them (from soy), same with lipsalves. You may need to cut out non-gluten-free shampoo etc.

Hope this helps. There is a lot more info in this area on this forum. Feel better soon. You have my sympathy. It is hard to know what to do when you feel sick so much of the time especially when you have a family to care for as well.

Hang in there. Feel better soon.

[Gwen B]

Are you still eating dairy and soy? I got nausea and stomach pain just like I did with gluten a couple of weeks into the gluten-free diet although I had not noticed a problem before. I went lactose free but cassein also gave me a bad feeling in the gut although not as bad nausea. Soy also now has a similar effect on me, gas, nausea.

Some people on this forum have had to give up nightshades also and even grains (not sure if potatoes count as in the nightshade family). I am avoiding Tapioca in gluten-free products and just trying to eat foods that are naturally gluten-free as much as possible. Juices may be healing but you may find the high acidity just flushes the nutrients straight through you. I have not been able to eat much raw stuff, because of this but I can now (31/2 months) eat salads and a couple of pieces of fruit, oranges are better than apple for some reason. Pears are good, banana too.

Check out supplements too, are they gluten-free. I can't even take tabs that have vit E in them (from soy), same with lipsalves. You may need to cut out non-gluten-free shampoo etc.

Hope this helps. There is a lot more info in this area on this forum. Feel better soon. You have my sympathy. It is hard to know what to do when you feel sick so much of the time especially when you have a family to care for as well.

Hang in there. Feel better soon.

Oops! sorry i misread your thread. I thought you said you were veggie, not vegan. But soy can make many people feel bad. Tomatoes are also difficult to digest uncooked. It is a bit of a minefield, but there is a lot of info here.

[veggiemama]

Thanks Gwen. Potatoes are nightshades.

I am looking into my shampoos, supplements etc... I am not eating soy, nuts or grains period.

Thanks for your support

[gluten15]

Thanks Gwen. Potatoes are nightshades.

I am looking into my shampoos, supplements etc... I am not eating soy, nuts or grains period.

Thanks for your support

As far as supps go almost all of this company's products are free of so many things we all need-Contains no yeast, sugar, salt, starch, soy, wheat, gluten, corn or milk. and the link I made to the website to get them from..I order from them all the time. Great customer service, fast cost effective shipping, and great prices.

Open Original Shared Link

[veggiemama]

Thanks gluten15. I've taken Now products before. I'll check out the web site.

I just found out the multi I've been taking contains gluten...

[Katester]

I can't believe you feel it too! I've had that since I went gluten free and have had no relief. It makes me feel so happy to know I'm not the only one! If you find anything that helps, please let me know!!!

[veggiemama]

I can't believe you feel it too! I've had that since I went gluten free and have had no relief. It makes me feel so happy to know I'm not the only one! If you find anything that helps, please let me know!!!

I found out that my multi-vitamin contained gluten so cutting that out has helped. Other than that, I am doing things to speed the recovery of my digestive tract so that I can start digesting things properly again. Taking herbs like slippery elm, marshmallow, chamomile, and aloe all help coat the digestive tract and help it heal.

[Mary Louise]

Hi,

I posted in the "Parents of Kids or Babies With Celiac Disease" because both myself and my daughter are celiac. We just found out last week.

I've read that people will feel better within 3-5 days of not eating gluten. I still have stomach pain and nausea -- mostly at night.

________________

from Mary Louise:

it was close to 6 MONTHS before i felt much difference. now, 13 months post dignosis i keep feeling better and better, stamina, sleep. Irritable bowel (IBS) and diarrhea rarely a problem now, am gaining (way too much) weight.

a friend of my husband's who found out about my celiac told him it took her 2 years before she finished recovery. Of course she may experience better health as time goes on, but she said at the 2 year mark she noticed a "settling" in symptom relief and is very pleased with where she is now.

I recall reading that sometimes the gut damage is permanent and does not improve health. that's a chilling thought...

I am on this site, just joined today, because i wonder if there are researach/studies that follow people who are gluten free after a long time being celiac, for me 50 odd years and identify other things to be aware of or be careful with...

i am not vegan/veggie so my diet is less complicated - wish i could help with ideas, etc., but cannot.

thanks for sharing.