Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis, 21

Kate H

By Kate H
in Coping with Celiac Disease

Recommended Posts

Kate H Newbie
Kate H
Posted

hi all,

i was just diagnosed this past january. i was just wondering if there was someone around my age who would be willing to talk to me about it or could give me some advice. i'm 21 and in my last year of university. i was diagnosed with ulcerative colitis at 9 and had my colon removed at 14, so anyone with both IBD and celiac i'd also be interested in talking to.

be well, and thanks!

kate

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvthelake21 Rookie
luvthelake21
Posted

hey just wanted to sat wecpme to the board. you will learn alot here.

pixiegirl Enthusiast
pixiegirl
Posted

I'm sure some younger people will say hi, but I know there are a lot of people in your age group on this list. Take some time out and read a lot of the topics in this list, you'll learn a lot. I've been diagnosed for 5+ years now and if it were not for this list I couldn't have done it. Everyone has been very helpful.

My daughter is on this list too (she's younger then you at 16) and she's been gluten-free now for only a month and doing pretty well. There is a learning curve to figuring this all out so don't beat yourself up if it takes a while but after time (at least for me) I don't even think about it very often, its all just second nature to me when I go shopping and such.

Welcome to the group.

Susan

cojaro Newbie
cojaro
Posted
hi all,

i was just diagnosed this past january. i was just wondering if there was someone around my age who would be willing to talk to me about it or could give me some advice. i'm 21 and in my last year of university. i was diagnosed with ulcerative colitis at 9 and had my colon removed at 14, so anyone with both IBD and celiac i'd also be interested in talking to.

be well, and thanks!

kate

I'm 20 and I've been gluten-free for, geez, more than seven years! The best advice I can give is to not cheat, though it may be quite hard not to. Be careful what you buy and always read the ingredients (though it seems you don't have to much anymore, as more food companies print what allergens may exist below the ingredient list). I know Wild Oats has a large selection of gluten-free food items, but they are $$$. The longer you stay gluten-free, the better you'll feel.

little00blondie Rookie
little00blondie
Posted

I am 21 as well! Feel free to chat away... nice to see someone else our age on here! : )

Tall-Laydee Newbie
Tall-Laydee
Posted

I'm a little older at 28 but I'm also newly diagnosed (on Feb 11th). This site really seems to have a lot of great information and so many people to support us both as we figure it all out.

Good luck!

mamasaidso Apprentice
mamasaidso
Posted

Hi Kate,

My daughter was just recently diagnosed as well. She is twenty-one and joined the forum last week. I'll be sure to let her know you are a member of this elite club as well. She is going off to new university in the fall and would love to have someone to talk to.

Best to you,

Maureen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kate H Newbie
Kate H
Posted
  • Author

Hi all,

Wow, thanks for all of your responses! I definitely appreciate the support-- as I'm sure you know it's been very tricky lately. I will certainly be in touch.

again, thanks for taking the time to write to me

Best,

Kate

Churellies Newbie
Churellies
Posted

Hi Kate. I was recently diagnosed as well back in November. I'm just about to turn 20 and am completely alone in this as I learn to navigate the gluten free world. Definitely contact me with any sort of anything you may want to talk about.

Good luck!

Ariel

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,801
    • Most Online (within 30 mins)
      7,748
    Jenn K
    Newest Member
    Jenn K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      4 Years and very little progress

      By trents · Posted

      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      4 Years and very little progress

      By Scott Adams · Posted

      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Bronwyn W · Posted

      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...