Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doing My Part


Mom23boys

Recommended Posts

Mom23boys Contributor

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Not sure how I can help although in things you send her you can quote some of the things we are doing in Hawaii with chefs and restaurant guidelines and classes for culinary students. Chefs tell me 10% of the guests not have some food allergy, mostly celiac followed by peanut followed by shellfish, so they know they have to get up to speed on it all.

Magazines love to write about hawaii!

good luck

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)
VioletBlue Contributor

Hmm, best of luck with that. Foodies can be some of the nastiest people when it comes to being tolerant of allergies and food intolerances. I learned that on the Jamie Oliver forum. One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill". But then these are people who are insisting that school lunch programs use "free range" chickens exclusively. Yeah, that would fly in the US.

My point is, they tend to get really defensive. I think they somehow see those of us with allergies and intolerances as somehow limiting their future options or something.

Violet

Mom23boys Contributor
One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill".

Well, I know you can have a nut case on any message board but the way this is set up in the recipe area doesn't really encourage it. I am focusing my efforts in the area where it asks for comments from people who have tried the recipe and give their reviews. If people can say needs more salt or needs less pepper, I feel I can say works well with soy as a sub or if you don't eat wheat use the rice noodles instead of corm.

I first choose a defining name using Gluten-free Casein-free in the name. I am trying basic recipes at first and giving my ratings and comments. After I have some up I am going to start trying recipes that call for pasta or milk. I still encounter way too many people who think we are some frumpy, twig eating, hippie types. We have actually had people accept invites out of curiosity only to find out we were "NORMAL". "Your stove is newer then mine!", "You have air conditioning", "You have furniture"...it gets down right scary at times when you hear the confessions.

The stereotype needs to be broken and they need to recognize that we can also be the teacher, the lawyer, the mom/dad, the company president...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.