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Question About Testing For Celiacs

3groovygirls

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3groovygirls Contributor
3groovygirls
Posted

I'm confused how you test a baby for Celiacs. From what I read if you are on a gluten free diet you won't test positive for it. However, if I give Violet gluten - even a few bites she reacts horribly! Not sleeping through the night, instant diarrhea, etc. There is NO WAY ON EARTH I would put her through that for 6 months to get the test correctly.

So what are my options? I'm clueless!

Thanks!

Linda

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itchygirl Newbie
itchygirl
Posted

Have you looked into gene testing? There are several excellent posts about that option on this site.

jayhawkmom Enthusiast
jayhawkmom
Posted

The blood tests aren't at ALL reliable in little babies and small children.

Even the most reputable Celiac specialists all agree on that.

If gluten makes your baby sick, by all means... avoid it. If you feel that you must have testing done now, unless you do the genetic testing... I think you'd have to continue feeding it to her. It's a horrible "catch-22" with regards to the definitive tests (which aren't always definitive, even in adults!).

Best wishes!

karinezoe Newbie
karinezoe
Posted

have you looked in Enterolab?

I hear they have stool testing that is very accurate even with small babies

try googling it....I also read alot about them on this forum and other celiac forums

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