Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Get Records


Worriedtodeath

Recommended Posts

Worriedtodeath Enthusiast

HI!

I requested the baby's records from the Ped Gi. WHat came was his computer notes - History of patient, discussion of sypmtoms, exam , assesment, and plan of action and procedures with a listing of the of places he scoped that says this

Findings in esophagus (enodscopic: NOrmal endoscopic appearance of entire stomach

(list several more things like that)

THen it has Biopsies taken and another listing of things that go

histology of esophageal biopsies:normal

Histology of antra biopsies : normal

And so on.

No where in these records do they have the actual report sent from the lab to them that they based their normal findings on. I know they should have because I have several reports in my medical file that is straight from the pathologist and list what all was performed, how they prepared the slides, what stainig was used, and so on. Do I need to request something different from the dr or do I need to request reports from somewhere different? I thought the pathology report would be included in the dr records but it is just their computer notes.

THanks

Stacie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

Hi. I would go back to your doctor and ask specifically for those things you know are missing. They should be a part of the record, and you have every legal right to have a copy of those. If there is some reason that the doc. does not have those or is unwilling to give them to you , then he needs to tell you where to get them from. A simple phone call should be enough. Hope that helps

Worriedtodeath Enthusiast

Well I made the phone call again to the office (we're not on the best of terms after he told me to put the baby back on wheat and forget about this gluten stuff since the biopsy ruled out Celiac - you can only imagine my response) and the records lady said OOOPS She just forgot to put all the surgical path results in. She would drop them in the mail to me. So we shall see what I get this time.

THANKS!

Stacie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      Virtual Support Group: Living Gluten Free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,449
    • Most Online (within 30 mins)
      7,748

    ellenkass
    Newest Member
    ellenkass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
    • Scott Adams
      Eating grains typically depletes certain B vitamins, so I'm not sure why they decided to fortify with calcium and iron, but hopefully we'll see more B vitamin fortification in gluten-free products going forward.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.