Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toughing Out The Gluten Challenge

cdog7

Recommended Posts

cdog7 Contributor
cdog7
Posted

So I'm still on a gluten diet so I can get the biopsy done, hopefully with near-accurate results if I'm lucky! This is just the pits. Hopefully it won't be much longer, but who knows

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happypoole Newbie
happypoole
Posted

I tried to go back on the wheat for the same reason, but gave up yesterday after a week and a half. I had forgotten how tired I felt from it! and found even more syptoms that i hadn't put down to wheat before. Good luck with it!

Rennie Deflatine might help, it eases things for me a bit.

alison24060 Newbie
alison24060
Posted

What is enterolab test? I haven't heard about that.

nb-canada Apprentice
nb-canada
Posted
So I'm still on a gluten diet so I can get the biopsy done, hopefully with near-accurate results if I'm lucky! This is just the pits. Hopefully it won't be much longer, but who knows
ravenwoodglass Mentor
ravenwoodglass
Posted

Posts like these make me so sad. If folks have been gluten free for a time and seen improvement and then when they add gluten back in they get sick, that is diagnostic. Whether your villi are totally destroyed or not, and that is what they are trying to do in the challenge, you know your bodies are reacting. Whether you are a full blown, close to death, villi destroyed technical 'celiac' is really immaterial IMHO. Some GI's will cancel the endo and diagnose on the dietary response to the challenge. Please be sure to let your doctors know in detail about your reactions.

Wonka Apprentice
Wonka
Posted
Posts like these make me so sad. If folks have been gluten free for a time and seen improvement and then when they add gluten back in they get sick, that is diagnostic. Whether your villi are totally destroyed or not, and that is what they are trying to do in the challenge, you know your bodies are reacting. Whether you are a full blown, close to death, villi destroyed technical 'celiac' is really immaterial IMHO. Some GI's will cancel the endo and diagnose on the dietary response to the challenge. Please be sure to let your doctors know in detail about your reactions.

I find it frustrating as well. My GI has told me that he doesn't think that I have celiac because the blood test was negative (I have IgA deficiency and it's an IgA test) and my biopsy was negative (I didn't know he had done a biopsy over a year ago until last wednesday - I had been gluten free for 3 years at the time of the biopsy - the endoscopy was for looking at damage due to GERD). I told him the list of symptoms that occurred when on gluten and how well I feel when I'm off gluten and was told I didn't fit the criteria for classic celiac (I get constipated more frequently than I get diarrhea). The two of us seemed to be inhabiting a completely different planet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...