Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Head Twitches


Mr. Peppa

Recommended Posts

Mr. Peppa Newbie

Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

Mr. Peppa Newbie

Whats up with all the quotes... they dont really help me :huh:

Lemonsieur Newbie

If indeed the smoking is causing it, it can take a while before it is completely out your system, and the side effect goes away.

Medications could possibly be the culprit as well. The asthma inhaler albuterol would give me the same head twitch only it would jerk to the left side. It would also give me shaky hands, roaming muscle spasms, and nightmares.

After I stopped taking albuterol it took a couple of months for all the symptoms to subside.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

Mr. Peppa Newbie
Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

ravenwoodglass Mentor
I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

I find your comment about swaying very telling. I did this for years before I was diagnosed and it stopped within a couple of months gluten free, as did the tapping foot (I can't do the fast tap even if I try now but was never completely still since I was a child). I think you should make real sure you are gluten free for a while, I would go six months since neuro problems can take longer to resolve. The reason why I suggested a sublingual B12 is because your body may not be able to absorb and utilize it when it goes into the stomach. The sublingual is absorbed by the mucous membranes in the mouth and goes right into the bloodstream there bypassing the gut. B12 is needed for proper nerve function. It helps the nerves fire and pick up the way they are supposed to. Misfires can cause the sort of thing you are experiencing and they can be progressive.

As to the idea that smoking pot did this, it is highly unlikey. I have done a lot of study over the years on the effects of drugs, I taught a drug, alcohol and sex education and prevention program and have also done a great deal of research. I have never heard of an effect like that from pot. However many of the rolling papers that are used to smoke it have gluten. Gluten is another molecule that is absorbed by mucous membranes, when you smoke a joint you are absorbing the gluten the minute it touches your lips. If however what you are talking about smoking is crack or meth, well that is another story. Those could very well do damage to the nervous system that would result in the type of effect you are having. I don't think you were referring to those substances though.

The best thing you can do is to do a strict trial of the diet and at first you need to avoid gluten containing alcohols and vinagers. You can challenge them later when you are well but many with neuro symptoms are sensitive to them and for complete resolution of your symptoms you may need to avoid them also.

It also sounds like you started smoking suddenly, was there a reason for this? Were you under a lot of stress? Had you been ill? Did something happen that caused you to look for relief from the world? Celiac may be triggered by a severe emotional or physical stress. You simply may have triggered the celiac at about the same time.

Mr. Peppa Newbie

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Eric-C Enthusiast

Cut out the carbs and sugar.

I get neurological problems like that. Hands/arms shaking and its a combination of things.

Its an incredibly long story but basically if I get myself really screwed up with gluten the sugar/carbs go right into my blood stream, kind of like leaky gut.

I had it happen last week to me. Sugar free(by choice for weight loss) and I went and accidently ate a ton of gluten...followed by a lot of simple carbs and sugar which I usually do not have.

Woke up shaking and couldn't stop it. Hands, arms, muscles in the neck...

You can either wait for your insides to heal and you'll start absorbing it properly and it'll go away or cut that stuff out, wait for it to heal and slowly add it back in.

It takes a while to go away, like 4-5 days for me but if you keep eating the carbs/sugar it takes longer.

ravenwoodglass Mentor
Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Every body is different, as is every bag of combustable materials. It is hard to know for sure whether or not something has been added although it is not common to spike pot. If others you are smoking with are drinking beer or smoking cigs that can contaminate the bong or pipe, just like if your significant other is drinking a beer and you kiss.

Sometimes we just don't know what caused an excaberation, it can be hard to pinpoint. It is also possible that for you pot is neurotoxic to a greater extent than the regular population, I have never heard of an effect like that but it doesn't mean it can't occur. I would stay away from the herb and alcohol for a bit until you are yourself again.

Also you say you have been gluten-free for a long time, does this include your toiletries, shaving creams, soaps, shampoos, lotions etc? Are you consuming gluten free grain alcohols and vinegars? Many with neurotoxic effects from gluten are unable to tolerate those although a lot of places will call them gluten free.

As for the embarrasment, try standing in front of a class of 30 11 year old boys with a male teacher and discussing nocturnal emissions. The teacher was under the desk before I was halfway done. :lol:

Edit: I do want to add that if this continues you really should get a second opinion, preferably from a neurologist. The doctor that was blaming it on 'nerves' and medicated you with an psychotropic without looking for a physical cause did you a disservice.

VioletBlue Contributor

Yeah, well, here's the fun question. Pot can get cut with all sorts of things. Do you truly know what's in yours? It's not like it comes with an FDA approved ingredient list :P

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Mr. Peppa Newbie

so if it was spiked, and this is the after affect, does it take time to wear off?

fedora Enthusiast

I live in a area with a unusually high amount of pot smokers. I have seen teenagers, pregnant women, nursing women, adults and seniors smoking. I have heard, but never seen, of kids smoking here. I have never heard of anyone starting to bob or shake from pot. Some people do get amped up from it. It is more of an upper than a downer for some. No bobbing though.

It does take a month for pot to leave your system. Speaking form someone who use to smoke alot, but hasn't in years, it took longer than that for the total effect to be removed from my body. I can not smoke. I have an autoimmune reaction to pot, but I didn't use to when I was younger. I had a few events in my life cause a change in my body. Although it is unlikely the pot itself causes this, it could be. You may have developed a reaction to it that will stop when it eventually leaves your body.

I have never heard of pot being cut. What I have heard of is Mold and pesticides and fertilizers. Do you know where it came from? Pot can mold. When it does it discolors. You may not notice this if it was Brick. Is it from Mexico? They use heavy pesticides. Non organic growers will use chemical fertilizers and pesticides in the US too. You can't wash pot to cleanse them off.

I have heard of people smoking laced pot, but you would definately know. They had PCP trips for days afterwords. This was in the late 80s early 90s though.

I do hope this subsides for you. If not PLEASE see a neurologist. I wouldn't take your drs word for it. It could be totally unrelated to pot, but the High triggered it more. Now it has just showed itself on it's own.

  • 8 months later...
drakey Newbie

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch and i could not stop it so i stopped weed and about a month after stoppin weed the twitchs stopped. but recently they have started up again and i have not smoked weed in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

drakey Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

ravenwoodglass Mentor
hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

You need to see your doctor and most likley a neurologist. This could be caused by a number of things including reactions to some meds. If you are on any prescription meds make sure you let you doctor know this is happening ASAP.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.