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California Support Group

annapumpkin

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annapumpkin Newbie
annapumpkin
Posted

Hi all,

I am looking to start a support group in my area because from what I am seeing we dont have one for 2 hours in each direction and I know there is a need. My problem is, is that I have no experience with this besides leading hospital volunteer groups. So I am wondering if there are any pointers you all can give me or show me the ropes so to speak. I figure if no one else will start one I will do it myself, im sick of waiting for someone else to do it. (5 years) Thanks.

-cheryl

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Lisa Mentor
Lisa
Posted
Hi all,

I am looking to start a support group in my area because from what I am seeing we dont have one for 2 hours in each direction and I know there is a need. My problem is, is that I have no experience with this besides leading hospital volunteer groups. So I am wondering if there are any pointers you all can give me or show me the ropes so to speak. I figure if no one else will start one I will do it myself, im sick of waiting for someone else to do it. (5 years) Thanks.

-cheryl

You can contact the Celiac Disease Foundation at www.Celiac.org. Deborah will be glad to set you up with a starter packet. :)

Great idea!

tom Contributor
tom
Posted
Hi all,

I am looking to start a support group in my area .. .

What part of CA are you in??

I'd be up for a group but I'm in San Jose.

annapumpkin Newbie
annapumpkin
Posted
  • Author

Thanks momma goose...ill do that today. and sorry tom im in Bakersfield California...the nearest support groups I have found are at UCLA or Fresno. :(

pinkscooby6 Rookie
pinkscooby6
Posted

Do you know of any support groups in San Diego, CA? It sounds like you have done your research, and maybe you would know of a site I could go on to find a group in my area.

Lisa Mentor
Lisa
Posted
Do you know of any support groups in San Diego, CA? It sounds like you have done your research, and maybe you would know of a site I could go on to find a group in my area.

Open Original Shared Link

Maybe this will be a start :D If these don't work for you, let us know and we can "hook you up".

ownafish Newbie
ownafish
Posted

Cheryl,

I live in Visalia. I did find a name and number of someone in Bakersfield that has a support group.

Gigi Sorenson

805-325-2339

Internet:

Gigi Sorenson, VLSorenson@AOL.com

Owen

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annapumpkin Newbie
annapumpkin
Posted
  • Author

Hi Owen

thanks for the information...unfortunately, the phone number and email address are no longer correct. I did have a listing with her name on it but it was 5 years old and the support group is no longer running. <_< Thanks for trying though :D

Momma Goose....i emailed Deborah and was never given a response back...and that has been since you posted your last comment. :blink:

-cheryl

annapumpkin Newbie
annapumpkin
Posted
  • Author

YAY!!!! I heard from Deborah and they had no listing for a Bakersfield Support Group...so I signed up! :D So I have to get through some paperwork but I hope to start a Bakersfield Support group here shortly! So everyone in the Kern County area you are MORE than welcome to come! I am also going to be going to the Celiac Foundation convention on May 3d. My first Convention! Im a little (just a little :rolleyes: ) excited. Thanks for the help guys... and hope to hear from you if your in my area!;)

-Cheryl :P

  • 4 weeks later...
skitube Newbie
skitube
Posted
What part of CA are you in??

I'd be up for a group but I'm in San Jose.

I'm also in San Jose and just starting on this journey. Is there any activity in the area?

Bill

Lisa Mentor
Lisa
Posted
YAY!!!! I heard from Deborah and they had no listing for a Bakersfield Support Group...so I signed up! :D So I have to get through some paperwork but I hope to start a Bakersfield Support group here shortly! So everyone in the Kern County area you are MORE than welcome to come! I am also going to be going to the Celiac Foundation convention on May 3d. My first Convention! Im a little (just a little :rolleyes: ) excited. Thanks for the help guys... and hope to hear from you if your in my area!;)

-Cheryl :P

Glad to hear that you are getting started. I kinda feel like it's great to "pay it forward" and the CDF and a local support group is a great way to do that.

Let us know about the Convention. I have never been to one and hopefully in the future I will be able to.

tom Contributor
tom
Posted
I'm also in San Jose and just starting on this journey. Is there any activity in the area?

Bill

Hi Bill,

This group Open Original Shared Link does a near-monthly potluck, but I haven't been able to make it yet.

  • 2 months later...
Stephielane Newbie
Stephielane
Posted
I'm also in San Jose and just starting on this journey. Is there any activity in the area?

Bill

I am from the San Jose area too, just diagnosed about 6 months ago. If anyone knows of a local support group, please let me know!

Thanks,

Stephanie

tom Contributor
tom
Posted
I am from the San Jose area too, just diagnosed about 6 months ago. If anyone knows of a local support group, please let me know!

Thanks,

Stephanie

Hi Stephanie,

There's Open Original Shared Link w/ ppl in the South Bay, Peninsula and Santa Cruz/Scotts Valley.

I haven't made it to one of their near-monthly potlucks yet, but hope to soon.

I get a daily email of the prior day's posts. Some days there are 2 or 3 posts, some days a dozen.

Mostly it's about useful local info - restaurants, stores, new products.

[Edit: oops :lol: I just saw that I wrote the same thing 2 posts up :chagrinedface: :lol: ]

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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