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Food Phobias?


OBXMom

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OBXMom Explorer

Are any of your children desperately afraid of trying new foods? Before he was diagnosed with celiac disease, we thought my 8 year old son was just the world's pickiest eater, but now we understand that he was in great pain all the time, and that his fears are the result of that pain. However, I am concerned now that his fears are so deeply entrenched that they may never go away. I would love to hear about other celiac children with similar fears, and any successful or unsuccessful attempts to deal with these fears.


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gfgypsyqueen Enthusiast

I have an extrememly picky almost 8 yr old who was diagnosed with severe peanut and tree nut allergies at age 2. She is smart. She tells teachers, family, friends etc that she can't eat (blank) because it contains nuts. They assume she is correct, so she gets out of eating that food. In reality she just doesn't like whatever they were serving (mayo, potato, most meats, and the list goes on and on.) It took a solid 5 yrs to see a change in her attitude toward trying new foods. Now she gets an adventursome day and she will try a couple of new foods. But mostly, she sticks to the foods she knows and likes. Even when she does try a new food, most times she makes a horrible face and says it is awful for the first few times she eats it. Her best incentive for trying new foods is her bottomless pit of a little sister. Must keep up with the younger sister :P

I have Celiacs and so does the younger child. I can say, I would prefer a picky eater when it comes to food allergies and Celiacs. The younger child will try anything - food or not. UGH! Everything gets tasted!!!

I can tell you what didn't work for us easier than I can tell you what did work. (That's a smaller list)We talk about food, nutrition, and what food groups are required for a healthy meal. (She doesn't always eat it, but we talk about it.) :blink:

  • Make sure the child has comfort foods to eat when he has been glutened. Don't bother trying to get him to eat something new then.
    Do not try to force him to eat. My kids just dig in their heals and refuse.
    Get him involved in the cooking and purchasing of foods. (What he thinks is good will be different than what you think.)
    Make sure school lunch is cool and the safe snack box at school is full of stuff the other kids will really want and beg for.
    Offer tastes of everything.
    Insist that at least one bite of everything on the plate is tasted in order to get dessert. (That only worked in the last year for us)
    Once he heals a bit, insist that there is no food and little drink at least two hours before dinner.

Good luck with your picky eater. It has been a long battle for us. But we are finally starting to see the light at the end of the tunnel!!!

BTW, my own opinion is that some kids are sensitive to their bodies without knowing it and may have foods that they do not like because they make them feel bad or funny. For both of mine, we found additional food allergies/sensitivites through this.

dandelionmom Enthusiast

The first poster has some great advice! I just wanted to say that you're not alone struggling with this. We're just focussing on getting healthy, safe foods into her and we're hoping she'll outgrow the pickiness. She has to some extent already and has added to her list of okay foods.

We're just trying to stay patient and not put food stress on her because us pushing or stressing about food seems to make her worse. I keep telling myself that she'll try new things when she's ready.

NewGFMom Contributor

My son digs in his heels and will not try anything new most of the time. But he is very slowly adding things into his diet. He helps me cook all the time and has NO interest whatsoever in trying anything that we make. :D

But sometimes he surprises me with what he'll try.

However, his picky eating is really a blessing in a lot of ways. He never wants to eat what the other kids are eating. He's very happy to stick to his very short list of foods.

But as he heals, he adds about one new food every month or two. It just takes a really long time. The nutritionist we saw, wasn't too concerned with the nutritional issues with his diet. It's just kind of inconvenient when we travel.

Just want to let you know you're not alone. A lot of celiac kids don't like to eat a variety of foods. But in a lot of ways, that makes managing it a bit easier.

OBXMom Explorer

Thank you all for the suggestions and for the encouragement. I had not really considered that it is truly a blessing that my son is not tempted to try things that will hurt him. It is a very good thing to keep in mind.

Hoping all of our little ones someday enjoy a wide range of healthy foods-

Jane

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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