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Went Guten Free Before The Test


sschramm

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sschramm Newbie

I have had so much frustration dealing with digestive issues throughout the years. I have seen gastroenterologists who have just diagnosed me with reflux, IBS, and put me on meds that have made me sicker. Well, I got off all the meds and went to see a naturopath who I was working with for quite some time. He believes that my symptoms have been mimicking that of Celiac so I have decided to go gluten-free. Well, since going gluten free I have gotten my appetite back, I am able to actually eat more than a couple bites at dinner. I still once and a while have some symptoms but I have heard that it can take a while for them to go away completely. I would really really like to get a blood test to confirm this so I made an appointment with a gastroenterologist to try to do so. My question is, will it still show up if I went gluten free? I have only been gluten-free for about 1.5 weeks now and I am going to see him in a few days. Any help appreciated.


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dbmamaz Explorer

Being gluten free can definitely affect the test, but everyone is different. If you are willing, you might want to try eating gluten again until your test. I had been gluten free almost 2 mo when I had the test, which was negative. However, my allergy test came up positive for wheat, barley and malt, so whether i have celiac or not, I'm not eating gluten anyways. Besides, I feel so much better, I wouldnt want to, even if all the tests were negative.

  • 3 weeks later...
blueyes Newbie

Gluten has to be in the diet (or reintroduced) in order for the test (blood serum, and/or tissue biopsy) to be conclusive.

For someone who has been gluten-free or Gluten-free Casein-free, this is often referred to as a "gluten challenge".

This should be done under the advice and direction of a physician.

Some links to information about the disease and diagnosing:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

You might also consider eliminating milk products from your diet, as this might cause similar reactions to gluten.

Gluten and casein intolerance are often interlinked.

Yellow Rose Explorer

I read several months ago on this board that when you go gluten free it takes 6 months of reintroducing it to your diet to get a true reading.

If it is working for you why do you want a test to confirm it. Your body is telling you everything you need to know.

Yellow Rose

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    • Scott Adams
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    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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