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What To Do For A Headache Because Most Pills Have Gluten


bon appetit

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YoloGx Rookie

Hi gpf,

Just wanted to add that with feverfew you have to take it for a month or two (I have forgotten the exact details--however I am sure you can look it up) every day for it to work. Its a kind of prophylactic that makes it so you just don't get the migraines (or at least as much). Feverfew helps make it so excess blood does not easily get stuck in your head. Though I will say it also helps to take it again while you do have a migraine too--especially as a tea. The prophylactic however could just be pills. Buy a bush, its cheap enough and once started hard to get rid of.

And you are right about the fibronylitic enzymes--they take down inflammation as well as get rid of excess fibrin which is what creates scar tissue. I use the bromelain/papain and nattokinase on an empty stomach (usually with my co-enzyme B vitamins) away from food. This way (i.e., taken away from food) the enzymes act as systemic enzymes. You can take serrapeptidase instead of nattokinase in case trace amounts of soy bother you.

Nattokinase is derived from Natto--fermented soybeans -- the bacillus is found in straw. You can also use Natto cakes--and get no doubt lots msore other enzyems too as well as the pungent taste. The ancient Samurai discovered its healing benefits curing scar tissue and giving the warriors extra energy (since it also clears the plaque buildup in the blood vessels etc.) over 1000 years ago.

Serrapeptidase functions similarly--its produced by silkworms so they can break through their silk chrysalis. Apparently its difficult to even shoot a bullet through silk, instead it often stretches.

I have found yes, taking down the source of the migraines really works. This not only means avoiding food sensitivities etc. as well as also taking down the inflammation itself (when avoidance doesn't happen or work) is crucial.

Bea


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bon appetit Newbie

Thank you for all of your advice I'm sitting here with a pen trying to get it all down. Nothing seems to be getting rid of this headache though. I had my biopsy today, Oh what fun. My GI specialist said I needed to adopt a high fiber diet but this confuses me because I eat tons of high fiber foods; popcorn, brocholi, culiflour, zuchinni, rice etc. basically everything I eat has high fiber content. Perhaps I'm simply not absorbing it because of the celiac disease?

tarnalberry Community Regular

I have had chronic headaches. Going gluten and casein free didn't get rid of them (though casein was a headache trigger). I never was able to isolate a particular migraine trigger really, and I'm on daily preventatives, because twice weekly migraines that last 2-3 days a piece is a bit of a problem. What was also contributing to my headaches, however, was a forward head posture and lack of curve in my cervical spine, from poor posture and musculature. Working with a chiropractor (almost entirely me doing exercises and traction, and then a few adjustments), I made a lot of progress in this area. I would add that suggestion that anyone with chronic headaches (migraine or not) to work with a structurally based chiro, or a PT or massage therapist.

YoloGx Rookie
I have had chronic headaches. Going gluten and casein free didn't get rid of them (though casein was a headache trigger). I never was able to isolate a particular migraine trigger really, and I'm on daily preventatives, because twice weekly migraines that last 2-3 days a piece is a bit of a problem. What was also contributing to my headaches, however, was a forward head posture and lack of curve in my cervical spine, from poor posture and musculature. Working with a chiropractor (almost entirely me doing exercises and traction, and then a few adjustments), I made a lot of progress in this area. I would add that suggestion that anyone with chronic headaches (migraine or not) to work with a structurally based chiro, or a PT or massage therapist.

I ditto that thought! Structural work is so important--and then self care. Thus the yoga and the tiny tennis ball for pressure point relief when you can't go to the therapist.

Bea

gfp Enthusiast
Thank you for all of your advice I'm sitting here with a pen trying to get it all down. Nothing seems to be getting rid of this headache though. I had my biopsy today, Oh what fun. My GI specialist said I needed to adopt a high fiber diet but this confuses me because I eat tons of high fiber foods; popcorn, brocholi, culiflour, zuchinni, rice etc. basically everything I eat has high fiber content. Perhaps I'm simply not absorbing it because of the celiac disease?

No because you don't adsorb fibre, that is basically what fibre is... (the part of food that is passed through in simple terms).

Rice, especially white has not so much fibre... basically its the part that is gotton rid of in white rice BUT the figures can be misleading because they often refer to uncooked rice. Hence per oz or hundred grams uncooked it appears quite good but when you adsorb all that water there is little left percentage wise.

Zuccini is similar, its lots of water .. take away the water and its not much fibre ... however eating food naturally high in water like zuccini, celery and cucumber is pretty good overall.

YoloGx Rookie
No because you don't adsorb fibre, that is basically what fibre is... (the part of food that is passed through in simple terms).

Rice, especially white has not so much fibre... basically its the part that is gotton rid of in white rice BUT the figures can be misleading because they often refer to uncooked rice. Hence per oz or hundred grams uncooked it appears quite good but when you adsorb all that water there is little left percentage wise.

Zuccini is similar, its lots of water .. take away the water and its not much fibre ... however eating food naturally high in water like zuccini, celery and cucumber is pretty good overall.

Have you tried using freshly ground flax seed? Grind 1 tablespoon in a small coffee grinder with 1/4 tsp. apple pectin. Mix in water, drink then chase with more water. Excellent as fibre. Really does the job without stressing the intestines. Plus gives you Omega 3's. The apple pectin also helps pull out excess toxins that might be hanging out as well as acting as a bulking agent and demulscent. Very inexpensive too.

bon appetit Newbie

I will definitely give that a try, I do like flax seed so perhaps I just start tossing it in with my cereal in the mornings as well. Giving up diet coke is proving to be rather difficult. I can't wait to experience the benefits of this profound dietary change, I had such a bad diet before chocolate, pizza etc. The other day when I left the library after hours of research I was hungry and there were tons of restaurants it was so tempting - water, water everywhere and not a drop to drink!


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ellen123 Apprentice

I just got off the phone with the company that makes Longs Drugs brand ("generic") ibuprofen and their 200 mg coated caplets are gluten-free. They're the same thing as Advil but a lot cheaper.

I'm waiting for an email back from the company that makes Traumeel (a homeopathic antiinflammatory tablet) that my friends swear by but I've never tried. If it's gluten-free too, I'll post it here and also on the Products forum.

Ellen

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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