Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawal Symptoms


Octoberme

Recommended Posts

Octoberme Apprentice

Hello all, another newbie here. Long story short after MUCH frusteration with doctors and such, I decided to start doing some research and trial and error on my own to help and make my HORRIBLY stomach upsets and BM's disappear. I was missing work all the time, having constant loose stools, horrible gas and stomach pains, etc. etc. It was awkward and embarassing and depressing......all of it. I tried a diet suitable for IBS, yet still had issues ( it basically said to eat a lot of white bread, pasta's etc ). So, then I decided to try and go gluten free. It has only been four days and already i am amazed at how mcuh better I feel. For the first time in a long time I ate dinner....and went right out after. No worries about having to run to the washroom or having horrible stomach pains or anything.

My only complaint however is that since starting this I am having SOME more " annoying " symptoms. I am getting dizzy from time to time, and just generally feel " lethargic ". I am tired most of the time and have little energy, though I do try and push myself. My mood is okay in the sense that I am extatic that I am feeling better, however I am just so " blah " and tired all the time and " foggy headed ".

I am 26 now and back when I was about 18 my doctor did tell me I was lactose intolerant so I have cut dairy from my diet a long time ago. I do have soy milk and the likes now, howver I am told that is okay for gluten free diets? I am a very healthy girl in my opinion, I am a healthy weight, I take caltrate with vitamin D to mak eup for whatever calcium I may not be getting along with a One A Day Weight Smart pill which I am told both of those are gluten free. I work out every morning, I don't smoke, I have an occasional drink ( however am drinking POTATO vodka now ). I am also sticking to complately gluten free.

So, I am not sure why I am having these " symptoms ". Could they be withdrawal? Also, and this may get graphic ( sorry ), before sutting gluten I would always have loose and frequesnt stools. Now, I seem to be more on the constipated side as I have to strain to releive? Is this from cutting gluten? Another more strange new thing that has developed is .....a milky white thick vaginal disharge ( sorry for the graphic )....again I am not sure if this is from cuttin gluten as well?

Any insight from anyone regarding this or withdrawal symptoms they have had woudl be helpful.

Also, I should ask, should someone sutting out gluten maybe try having protein powder ( if they have one that is gluten free ) to curb hunger and help with energy?? Also, does anyone know if WHITE VINAGER or just VINAGER, if on a label, is safe?

Thank you for reading and thank you for this site and these forums. I have had SO much help through reading these!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loco-ladi Contributor

Dietary response would indicate you should get tested for celiac disease immediately...

if you continue to eat gluten-free the blood test and biopsy will be false negatives, if you dont care to get a positive diagnoses continue to eat gluten-free and enjoy life in general.

also be aware depending on your level of damage to your intestines you may also need to eliminate other foods at least for a short time (6-12 months) such as dairy.

MELINE Enthusiast
My only complaint however is that since starting this I am having SOME more " annoying " symptoms. I am getting dizzy from time to time, and just generally feel " lethargic ". I am tired most of the time and have little energy, though I do try and push myself. My mood is okay in the sense that I am extatic that I am feeling better, however I am just so " blah " and tired all the time and " foggy headed ".

Yes I've had that thing when I stopped gluten and I guess it was because my intestine was so so so damaged that I could not get the essential vitamins from the food I was taking. It took me exactly 3 weeks to get my energy back but at the time I started eating HUGE amounts of food and losing wait. Strange things started happening when I quited gluten. But after 3 weeks everything went back to normal. Think that quiting gluten is a great shock for your system and it is trying very hard to get used to the new condition.

As far as the change you noticed in your toilet habits yes it is a fact that gluten may cause you loose stool and when you go gluten-free this changes. For the other questions I have no answer....A! About vinegar I thing you should avoid it but I do not remember why.....(I never liked vinegar) . Someone in the forum has started a topic about vinegar.....you should check it out. (balsamico is for sure a no - no because of the caramel colour which has gluten).

Please be very careful cause in the beggining you may be glutened without noticing. Check your toothpaste, your shampoo, your comsetics and any hidden gluten in food. There is a list with all the ingredients you should avoid, if you want it ask me to post it.

I hope you feel better soon.

Meline

AliB Enthusiast

Getting weird symptoms for a while after starting gluten-free is quite common. Gluten is a very addictive neurotoxin so it is common to get withdrawal symptoms. You will also experience detox too.

The 'discharge' suggests to me that you also have a problem with bacterial overgrowth (candida). Because the bacteria feed on the undigested carbs and sugars you eat they will proliferate and cause other problems within the body. I would suggest that you avoid fermented foods for the time being until you can get the bacteria under control and that would include vinegar.

The best and quickest way to get your body back to health is to try and eat as simply as possible. Stick to plain unprocessed meat, fish and poultry with no additives, fresh fruit and vegetables, and a little honey and nuts if you can tolerate them, although it is best if you buy nut in their shells and crack them as shelled nuts can sometimes have molds on them which will encourage the yeast bacteria. You may find it prudent to take some good probiotics or plain good quality probiotic yogurt to replenish the good bacteria (you can have it with fruit and I sometimes sweeten it with a little honey - don't be tempted to eat the flavored 'probiotic' yogurts that are full of sugar and extremely counter-productive - sugar feeds the 'bad' bacteria!).

Try to avoid as much as you can in the way of starches, grain products and particularly sugar. I have been gluten-free for 2 months. As I still had issues with even non-gluten foods particularly carbs, I started to follow the Specific Carbohydrate diet which is based on simple foods as above and within those 2 months I am beginning to feel a lot better. You have to be patient. You will not get better overnight. whilst some issues can resolve quite quickly, others will take longer.

I too had strange things happen after gluten-free - a constant headache for 2 weeks, numb hands and feet, lots of catarrgh and mucous although I was dairy free, stages of different stool types - like you, going from diarrhea to almost constipation, then when I started the SCD very pale and floaty, but they are now settling down into a 'normal' level. I was also very tired and fatigued, but those things have resolved and I am beginning to get my energy back - even at this level it is still tons better than it has been for a long time.

As you start to get the bacteria under control you may also experience die-off and that can also give you some brief unpleasant side-effects - I suspect that is what may have been affecting my stools. The fact that you are getting a discharge now may also be to do with die-off of the bacteria.

I don't worry about protein powder - it is yet another processed food that probably contains chemicals. I would rather just have some protein!

Octoberme Apprentice

Thank you everyone for your replies. This site has been so helpful to me and everyone is so nice here.

I woudl have liked to wait to get tested / a biopsy before going on the gluten free diet however I just could not live with the pain / uncomfort that I was in anymore. I was missing so much work that I was going to get fired, my boyfriend and I were nothe verge of breakup as I was moody and frusterated as to what was going on with me, I was becoming depressed because I was so sick I did nto leave my house and also because I was scared and worried ....

So, I did just have to do something. I am " awaiting " a specialists call for them to set up an appointment for me - in abotu two months :-(

But yes, I also have cut out dairy, actually I have not had dairy for the most part in about 8 years as my doctor told me then I was lactose intolerant. So I am good there.

And as for all other advice / suggestions - THANK YOU. I will for sure be doing my best to follow everything I can and ....lol......be patient :-)

Thanks.

AliB Enthusiast

I was in the same place as you when I went gluten-free.

My stomach had been getting worse for some time but in the end I was in so much pain - swallowing antacids by the bucketful and I didn't know what to do with myself. It wasn't until my digestion finally collapsed and I was running with diarrhea that I ended up in the hospital, but although they did an Ultrasound and blood tests, they could find nothing wrong.

Back to the drawing-board I went and after researching on the net came across Celiac. A light-bulb went on as just before she died my Mum had been put on a gluten-free diet in the hospital so her doc obviously suspected it and as I learnt more about it I became sure that she was Celiac.

I went straight down and got blood taken for the test and started gluten-free immediately because I was in so much pain. Within 5 hours the pain had gone, never to be 'seen' again! Like you I could not have waited for a biopsy.

My test was negative. I know that is not definitive but to be quite honest I don't really care - I may be celiac, I may not. Whatever the case I will not be eating gluten again and will be a lot better for it. Unfortunately these days, due to the modification of the wheat and the damage it is doing to all of us, Celiacs do not have the monopoly on health benefits from avoiding gluten.

tired47 Newbie
Yes I've had that thing when I stopped gluten and I guess it was because my intestine was so so so damaged that I could not get the essential vitamins from the food I was taking. It took me exactly 3 weeks to get my energy back but at the time I started eating HUGE amounts of food and losing wait. Strange things started happening when I quited gluten. But after 3 weeks everything went back to normal. Think that quiting gluten is a great shock for your system and it is trying very hard to get used to the new condition.

As far as the change you noticed in your toilet habits yes it is a fact that gluten may cause you loose stool and when you go gluten-free this changes. For the other questions I have no answer....A! About vinegar I thing you should avoid it but I do not remember why.....(I never liked vinegar) . Someone in the forum has started a topic about vinegar.....you should check it out. (balsamico is for sure a no - no because of the caramel colour which has gluten).

Please be very careful cause in the beggining you may be glutened without noticing. Check your toothpaste, your shampoo, your comsetics and any hidden gluten in food. There is a list with all the ingredients you should avoid, if you want it ask me to post it.

I hope you feel better soon.

Meline

Meline,

Please post the list of all ingredients to avoid. This is all a bit confusing to me yet and I am trying hard to stick to a strict gluten free diet ( as well as soy, dairy, no red meat)to see improvement as soon as

possible. And what about the vinegar... the nutritionist told me bragg's apple cider vinegar was okay and actually good for me???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmcbride4291 Contributor

I told this to other mebers so this may fit.

Open Original Shared Link

Basically from intestinal damge your gut can leak food and beverage particles. This toxify's your body and cuases your immune system to go bizurk because of the foreign bodies and you will feel lousy. Look up on the link I enclosed. Good Luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,256
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.