Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When It Rains, It Pours....now 3 Year Old


kim26

Recommended Posts

kim26 Apprentice

hey everyone!

here's the deal, my 7 year old daughter was recently diagnosed w/ celiac....and she's doing great! I've gone on the diet with her and im feeling better as well after years of dealing with "IBS"..big surprise right lol!

so the issue now is my son..... since my daughter's initial tentative diagnosis 2 months ago I've been paying more attention to my son and watching for any symptoms, he shows no signs of celiac...he's healthy, energetic, eats well and definitely doesn't have any growing issues. HOWEVER, in the past month I've noticed some oddly colored stools. pale i guess you would say. (he's fully potty trained but i still wipe him when he poops).first they were like light yellow or pale brown color, now they are sometimes green and orange. and i truly cannot attribute it to anything he's been eating.. sometimes yogurt will turn his stool strange colors but he hasn't had any at all lately. I've read that this can sometimes mean that there is an issue with the bile and be indicitive of food moving through the system too fast, but he's having no diarrhea. ugh, im wondering if i should be concerned or consider testing him? he's only three, he'll be four on april 18th. thanks in advance for any advice or thoughts you can share!!~K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ridgewalker Contributor

I'm so glad your daughter and yourself are doing well!!!

If you read the dates in my signature, you'll see that that's similar to how it happened with us too! Looking at the members on this forum, Celiac is apparently much more hereditary than doctors believe.

I'm not sure about your son, but I would urge you to remember that not all Celiacs get diarrhea. My 4 yr old never has had diarrhea from gluten so far, although his neuro symptoms are very... dramatic, shall we say? And he is more likely to have accidents when glutened.

Also keep in mind that symptoms can evolve. My older boy only had diarrhea sporadically before going gluten-free. Now if he gets glutened, he has severe diarrhea.

Have you looked over any symptom lists lately? Some symptoms common in children are:

-Diarrhea

-Constipation!!!

-Dark circles under eyes

-Overly emotional/temperamental

-Difficulty concentrating

-Symptoms similar to ADD, ADHD, and even Bipolar Disorder

-Fatigue, even when getting plenty of sleep

-Short stature, slow growth

-Skinny arms and legs with a pot belly

-Bedwetting, difficult to potty train

-Severe diaper rashes, mouth thrush

-Dental enamel problems, many cavities

These are just symptoms I know right off the top of my head, I'm sure there are others that I'm forgetting.

Also remember that testing in small children is not always accurate. False negatives are more common than is reported my doctors/scientists.

I hope some of this helps-- keep us updated!

kim26 Apprentice
I'm so glad your daughter and yourself are doing well!!!

If you read the dates in my signature, you'll see that that's similar to how it happened with us too! Looking at the members on this forum, Celiac is apparently much more hereditary than doctors believe.

I'm not sure about your son, but I would urge you to remember that not all Celiacs get diarrhea. My 4 yr old never has had diarrhea from gluten so far, although his neuro symptoms are very... dramatic, shall we say? And he is more likely to have accidents when glutened.

Also keep in mind that symptoms can evolve. My older boy only had diarrhea sporadically before going gluten-free. Now if he gets glutened, he has severe diarrhea.

Have you looked over any symptom lists lately? Some symptoms common in children are:

-Diarrhea

-Constipation!!!

-Dark circles under eyes

-Overly emotional/temperamental

-Difficulty concentrating

-Symptoms similar to ADD, ADHD, and even Bipolar Disorder

-Fatigue, even when getting plenty of sleep

-Short stature, slow growth

-Skinny arms and legs with a pot belly

-Bedwetting, difficult to potty train

-Severe diaper rashes, mouth thrush

-Dental enamel problems, many cavities

These are just symptoms I know right off the top of my head, I'm sure there are others that I'm forgetting.

Also remember that testing in small children is not always accurate. False negatives are more common than is reported my doctors/scientists.

I hope some of this helps-- keep us updated!

Ridgewalker,

Thank you for your quick reply ! I do know that celiac rears its ugly head in many different forms. in fact many of the improvements we've seen in our daughter are neuro! she is feeling better physically for sure, but emotionally she is an entirely different child! i always just thought she was clingy and over sensitive, she's not it was the gluten the whole time!

My son is not really clingy, but he is very particular about things...to put it very diplomatically lol! we always refer to him as being OCD. And he can turn his emotions on and off like a light switch, one minute his world is crashing down the next he's fine. i guess until recently i just assumed this was his personality, and it may very well be, but my daughter's diagnosis and huge turn around really makes me wonder. its a lot to think about! i appreciate your input!

taweavmo3 Enthusiast

I would definately keep a close eye on him, and consider testing at some point. My dd was dx'd first, then I noticed symptoms in my other children. However, my other children were not as obviously sick as my dd had been. The boys just had loose stools, but never diarrhea. They also displayed skin issues (eczema, then psoriasis) and behavioral issues. I had them both tested, which came out negative. I went ahead and tried the diet anyway, and all their symptoms improved. I don't really think they were full blown Celiac like my dd, but at the very least they are intolerant. I couldn't just sit by and wait for things to get bad. I figure they can make that choice when they are older....for now, I just want to keep them as healthy as possible.

Like you, I also went on the diet with my kids and felt much better. I too think that it may be more hereditary than doctors think, at least based on my family tree full of auto immune disorders, lol. Good luck with what you decide!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.