Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy/soya Lecithin


CRB

Recommended Posts

CRB Rookie

Hi! My hubby has been gluten free for just 4 months. We realized in January that he also has issues with soy. My question is whether soya lechithin is part of soy or not... I mean, obviously it's made from soy at some level, but would being allergic to soy mean you'd be allergic to it in lechithin form?

Also, anyone else have allergies to soy? If so, do you have other allergies as well, or just those 2?

And one more, has anybody found a chocolate that is soy-free? He doesn't have the chocolate cravings I do (good thing, too!) but it would be nice to find one we could all eat.

Thanks!

Cynth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I've read posts from members who say they can handle soy lecithin just fine, even though they cannot eat whole soy products. The lecithin is usually fairly pure, as it is isolated from the soybeans. So the amount of impurities is supposed to be very low, which I'm sure it why some find it ok, and others not.

As for chocolate, I can't help you there. But if it were me, I'd probably buy plain cocoa powder, so I could add my own ingredients. No dairy, Stevia instead of sugar, etc.

soywheatpeanutfree Newbie

I'm allergic to soy, wheat, peanuts, and some other stuff.

The only soy-free chocolate I've seen is on a website. Just search Google for soy free chocolate and it'll be the first thing. I haven't tried anything from them, so I don't know how good it is. It's worth a shot, though.

Juliebove Rising Star

It's the same. May or may not bother your husband. I've found my daughter doesn't seem to react badly to soy lecithin. But soy protein, forget it!

Enjoy Life chocolate chips are free of all allergens, including soy. In my area they are available at several grocery stores, or you can order them online.

This place sells soy free chocolate, but you do have to be careful if you have other allergens. Some of it contains dairy and it may not all be gluten-free.

Open Original Shared Link

RiceGuy Collaborator
It's the same

While soy lecithin is derived from soy, it is most certainly not the same as whole soy. Granted, that doesn't mean there can't be any reaction though.

CRB Rookie

Thanks, everyone! I'm in the Philippines and my internet has been down for days so I haven't gotten on until now.

I think once he's doing a bit better we'll give soya lecithin a try.

And thanks for the hints on the chocolate! I'll google them.

One other thing.. I've been baking my own bread and seem to be causing some kind of reaction. I threw out my box for egg replacer. Anybody know if they often contain soy?

Thanks!

Cynth

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.