Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice On Sublingual Vit B12


Puddy

Recommended Posts

Puddy Explorer

Hi...I could use some advice. I was diagnosed about 6 weeks ago with celiac disease...no GI symptoms, just anemia and osteoporosis. I had bloodwork done after a month on the gluten-free diet and my Transglutaminase IgA number went from well over 100 to 60. I had a follow-up appt. with my GP and she went over the bloodwork my GI doctor had drawn. My B12 level is within 'normal' range but towards the low side. My folate level is high however. I've read that a high folate level may give a false normal B12 level? The GI doctor said everything was fine, but my GP wants me to go on sublingual B12. She said you cannot take too much B12, your body will secrete what it doesn't need. My question is does anyone use this and what brands do you recommend? I think there are 2 different kinds of B12 and am not sure which is better. Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

While most B12 supplements are cyanocobalamin (which contains cyanide), the best type by far is methylcobalamin. The doctor is right about the fact that you cannot overdose on it, but from what I've read, the body doesn't excrete it. Rather, it stores the extra for later use. Apparently the body can store enough to last over a decade. That's what I read on www.whfoods.com

Anyway, I use Open Original Shared Link. Taken three times daily, will give you 3mg, which is supposed to be the amount most effectively absorbed. I do not know if this product is the best of the gluten-free ones around, but I do know it works.

Another nutrient you might find helpful is magnesium. That along with calcium and vitamin D are very good for bone health. There are numerous products out there which combine these three into one supplement. Open Original Shared Link has a number of them, and at least some are gluten-free.

Puddy Explorer
While most B12 supplements are cyanocobalamin (which contains cyanide), the best type by far is methylcobalamin. The doctor is right about the fact that you cannot overdose on it, but from what I've read, the body doesn't excrete it. Rather, it stores the extra for later use. Apparently the body can store enough to last over a decade. That's what I read on www.whfoods.com

Anyway, I use Open Original Shared Link. Taken three times daily, will give you 3mg, which is supposed to be the amount most effectively absorbed. I do not know if this product is the best of the gluten-free ones around, but I do know it works.

Another nutrient you might find helpful is magnesium. That along with calcium and vitamin D are very good for bone health. There are numerous products out there which combine these three into one supplement. Open Original Shared Link has a number of them, and at least some are gluten-free.

Thanks, Rice Guy. I was hoping you would answer me! I had seen old posts of yours about Vit B12 and didn't have time to search for them. (Shhh I'm at work...don't tell anyone.) Anyway you seemed very knowledgeable about this. I had actually just found the Source Natural website so am ordering from them. They have a 1mg and a 5mg. You feel it's better to take the 1mg 3 times a day rather than the 5mg 1 time a day? Thanks again for your help.

RiceGuy Collaborator
You feel it's better to take the 1mg 3 times a day rather than the 5mg 1 time a day? Thanks again for your help.

Yes, research indicates that the body can't absorb more than 5-6mg in a given day, and that the most efficient absorption was measured when the intake was over a period of time rather than all at once. Also, 3mg was found to be the most efficiently absorbed. Apparently, the absorption tappers off above that. So I figure the three times daily, for a total of 3mg would give my body the time it needs to absorb it.

Incidentally, when I first started taking it, the lozenge would take nearly a half hour to dissolve. Now it's gone in like 12-15 mins. So I am thinking my absorption has improved.

Puddy Explorer

Thanks again RiceGuy. You've been such a help to me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.