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Intestinal Swelling


lcarter

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lcarter Contributor

It took years for me to be finally diagnosed: As an only child, I had a problem with dairy as an infant, with projectile vomiting after bottle feedings (Mom didn't breast feed), and was continually underweight. I was very sickly growing up with frequent flu like symptoms, yet no doctor suggested food allergies or intolerances all those years. At 27, I became pregnant for the first time. I weighed only 98 lbs at 5'3". So, the ob-gyn told me I needed to gain weight -- he recommended lots of high calory foods which usually seem to involve dairy. I did as told and got so ill they were afraid I would loose the baby. He sent me to a gastroenterologist who said, "oh, you have lactose intolerance, just limit the amount of dairy you ingest." That wasn't the answer! Out of desperation a nurse friend suggested an allergist who was also knowledgable about food problems. It was a long drawn out process -- but this wise, almost retired dr finally figured out that I was milk protein intolerant and could not tolerate even the faintist hint of milk in foods or meds. However...there was still something else which didn't show up on any of his tests. So, I continued to have minor (in comparison) problems thoughout another 15 yrs. It took an emergency trip to the hospital (after eating amost a 1/2 box whole wheat Tiscuits on an airplane flight), in sever pain with the small intestines almost swollen shut, and the surgeon threatening to take out part of my intestines, that it was ever sugested that it could possibly be gluten. A couple of months later I had a repeat experience and took seriously the idea of gluten being the culprit. I went on a gluten free diet imediately. I kept feeling better and better until all my symptoms gradually went away. My gp after a few months did a blood test for celiac when he found out I was eating a gluten free diet--of course, the test was negative. Then, he suggested that I have an endoscopy, but I refused as I knew these tests are not 100%. Besides, what was the point? The diet worked! Fortunately, I have to be such a bear about what I eat because of the dairy protein intolerance, gluten wasn't that hard for me to eliminate as well. It's been over 2 yrs now and I remain absolutely symptom free! :D


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    • Mari
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    • Jmartes71
      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for some reason not acknowledging my digestive issues ive given copies of.As stated in pervious post I was given breath test which I was positive with that dr and prior to him a few months, still wanted me to do.
    • Mari
      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems you had when you were in your 30s. The only cure for Celiac Disease is being strictly gluten free.  Your medical providers are correct in telling  you that you do not have active Celiac Disease. Do you understand that? You may have some other developing health problems and I can write  more if you  answer the question.                         the only cure for celiac disease is being  gluten gree.
    • Aretaeus Cappadocia
      Celiac is too common to be "rare" under the standard definition. Does this group do anything with Celiac?
    • Lotte18
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