Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intestinal Swelling


lcarter

Recommended Posts

lcarter Contributor

It took years for me to be finally diagnosed: As an only child, I had a problem with dairy as an infant, with projectile vomiting after bottle feedings (Mom didn't breast feed), and was continually underweight. I was very sickly growing up with frequent flu like symptoms, yet no doctor suggested food allergies or intolerances all those years. At 27, I became pregnant for the first time. I weighed only 98 lbs at 5'3". So, the ob-gyn told me I needed to gain weight -- he recommended lots of high calory foods which usually seem to involve dairy. I did as told and got so ill they were afraid I would loose the baby. He sent me to a gastroenterologist who said, "oh, you have lactose intolerance, just limit the amount of dairy you ingest." That wasn't the answer! Out of desperation a nurse friend suggested an allergist who was also knowledgable about food problems. It was a long drawn out process -- but this wise, almost retired dr finally figured out that I was milk protein intolerant and could not tolerate even the faintist hint of milk in foods or meds. However...there was still something else which didn't show up on any of his tests. So, I continued to have minor (in comparison) problems thoughout another 15 yrs. It took an emergency trip to the hospital (after eating amost a 1/2 box whole wheat Tiscuits on an airplane flight), in sever pain with the small intestines almost swollen shut, and the surgeon threatening to take out part of my intestines, that it was ever sugested that it could possibly be gluten. A couple of months later I had a repeat experience and took seriously the idea of gluten being the culprit. I went on a gluten free diet imediately. I kept feeling better and better until all my symptoms gradually went away. My gp after a few months did a blood test for celiac when he found out I was eating a gluten free diet--of course, the test was negative. Then, he suggested that I have an endoscopy, but I refused as I knew these tests are not 100%. Besides, what was the point? The diet worked! Fortunately, I have to be such a bear about what I eat because of the dairy protein intolerance, gluten wasn't that hard for me to eliminate as well. It's been over 2 yrs now and I remain absolutely symptom free! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rosalie P posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Oat &gluten free eczEMA MOISTURIZER

    2. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      35

      Insomnia help

    3. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      11

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    5. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Reverse Osmosis (RO) Water

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,502
    • Most Online (within 30 mins)
      7,748

    Rosalie P
    Newest Member
    Rosalie P
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rosalie P
      Looking for recommendations, most have “unsafe” oat ingredients
    • trents
      @cristiana, milk is also a good source of magnesium, another very important nutrient in nervous system/mood health.
    • trents
      @cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores?
    • trents
      Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked me for all the hepatitis varieties but cold not find any reason for the elevated liver enzymes. I was also slipping into mild anemia by the time I was in my late 40's and had developed some occasional loose stool and oily stool. My PCP had no clue. I was really concerned about the liver enzymes as they were steadily increasing though never got to alarming levels. My PCP threw his hands up and said during one office visit, "I don't know why your enzymes are elevated. Maybe that's just the way your are." Well, that was not a satisfactory answer. This was about year 2000 and it was not well known that one of the atypical symptoms of celiac disease is elevated liver enzymes. In fact, it happens in about 18% of celiacs. Finally, I booked an appointment with a GI doc who tested me right away for celiac disease and I was positive, both for blood work and biopsy. Within a few months of eliminating gluten my liver enzymes had normalized. But it took 13 years to get a diagnosis. And by that time I had developed osteopenia. Sorry for the long-winded story. My point is, celiac disease can be very slow in developing. By the time symptoms manifest themselves to the extent where they get your attention such that you seek testing, much damage can already be done to body systems. You and your son are very smart to be be pursuing this thing early in his life and let me encourage you, that whatever the next round of testing reveals, you continue to get testing done on a regular basis.
    • Known1
      Initially I was going to re-post all of the threads that have people stating they drink or recommend RO water.  There are just too many to post, so I'll recommend using the search feature here to find them all.  There are currently 4 pages worth of posts with people mentioning or recommending RO water/filtration systems.  Granted, some of the search results are from this thread. For me, it causes major issues with my stomach and as mentioned, there is no way I will ever intentionally drink it again.  As we know, everyone's body is different.  I am certainly not looking for a debate, but do highly advise anyone considering RO water to do their own research. Consider starting with this Google search:  Is reverse osmosis water safe to drink long term?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.