Just Diagnosed With Lyme Disease...

[Guest LittleMissAllergy]

I've seen a lot of people around here talk about having lyme, getting better, and then not having food sensitivities anymore. I'm a little overwhelmed right now, so I think I just need to hear from those people.

I was just diagnosed this afternoon, without the blood test. They drew for blood, but as you all probably know...lyme is hard to detect and diagnose.

Basically I've been sick for 2 years; I started addressing heavy metals and bacterial infections and started feeling better (was addressing them through the methylation process/pathway) and then stopped trying to detox. I was feeling a little better, but I was still having to eat the same foods everyday, there's only a handful I'm not sensitive to. I was also still having some GI trouble.

But then I went through a very stressful couple of months, and now for the past two weeks I've felt sicker than I've ever felt before. My spleen is inflamed and very swollen, I have alternating watery stool and hard grey stool (overall not much coming out), severe cramps, really scary shortness of breath, heart palpitations, nausea, weight loss and extreme fatigue.

So my doctor (who practices alternative medicine) thinks it's lyme disease. He told me it comes in waves kind of and I just need to lay low until this passes, then we can address how to treat it (he still has to look at the blood test though). I'm worried though...because first of all, I'm scared of how sick I feel and I don't know how many more days I can do it without any relief...and second of all, I don't think my body can handle antibiotics. I have trouble breathing just sitting here at times.

So I'm just looking for any advice, or stories...or anything at all really. Thank you!!

[dlp252]

I just saw your post on the Lyme Disease thread, but thought I'd search out this post too.

Stress (any kind...emotional, physical, good, bad, etc.) can definitely cause problems. My doctor (a lyme literate MD) really, really wants me to avoid stress...he even mentioned he'd like me to find a different job (I work for a law firm, lol). He wants me to make sure I get enough rest, not to overdo anything, to avoid foods and chemicals that I'm sensitive too, etc. If your body is fighting those things, it can't fight the lyme (and the other issues it causes) as efficiently.

In my case the lyme is really affecting my adrenal glands, thyroid and neurotransmitters (things like norepenephrine, epenephrine, melatonin, DHEA, etc.). So that really affects my ability to handle stresses.

I had been feeling so much better lately, but a few weeks ago I got a nasty cold that had been circulating around the office. That really seemed to set me back a step or two...

Do you know what lab they are using for the bloodwork? I was first diagnosed by alternative means, but then had blood testing done which confirmed that.

[CarlaB]

Like Donna, I saw your other post and thought I'd see what you had to say here.

Your air hunger symptom sounds a lot like babesia. It does get scary .... that was a big symptom for me.

I've been in treatment for 15 months. My LLMD is very aggressive and has had me on heavy antibiotics plus natural stuff to build my immune system. His approach is that it's not enough to kill the bugs, you have to also build your body to be able to take care of this stuff itself.

I've also had issues with heavy metals, parasites, babesia, bartonella, bacterial overgrowth in the intestines, thryoid, adrenals, etc.

It's never just one thing with Lyme. Lyme weakens the whole system so everything gets out of whack.

[rinne]

Hi, it sounds like you are on the right track and having alternative health care is critical, IMO, with Lyme.

I have probably done less in regards to treatment than others, in fact I haven't seen anyone for over a year now. I have made steady improvements on my own.

I would recommend the Klinghardt protocol, Rachel has seen someone who works with him. I used it on my own and saw real progress. I am not suggesting you do that, perhaps your health care person is familiar with him or willing to look at his treatment methodolgy.

And yes to need to be stress free, how are your B levels?