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Any One Been Diagnosed With Fatty Liver, Nash, Or Nafld


JodiC

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JodiC Apprentice

Since going gluten free in 2005, I'd say I feel maybe... 50% better. Lately I have been experiencing RUQ abd pain (dull and achy) that goes into the back. I also feel pelvic and rectal pain. I have has bouts of rectal bleeding and recently had a colonoscopy which only showed irritation and areas of friability, and the colon bruises very easily (?). Drs feel that the colon is not the cause of the discomfort but it may be coming from higher up. What they did find is that despite a gluten free diet the liver (had an ultrasound) is becoming more and more infiltrated with fat. A biopsy would be needed to know for sure, but it has not come to that point yet. I have had an unexplained weight gain of 30 pounds in a few months along with the other symptoms. I know that Celiac can effect the liver. Does anyone else have fatty liver, NAFLD, or NASH? What did you do and how was it diagnosed? Can the liver continue to deteriorate despite a gluten free diet? Also have malabsorption of vitamins like D, Bs, Iron, Calcium, etc. I take some of these every day to try to keep the levels up.


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cyberprof Enthusiast

What is NAFLD? What is NASH? ... Nevermind- I googled them.

I have Focal nodular hyperplasia (FNH) is the second most common tumor of the liver plus I have a hepatocellular adenoma. Neither of these are linked to celiac but I wonder.

~Laura

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    • RMJ
      Yes, it would make sense to go mostly gluten free, since it gives your troubles.
    • SMK7
      Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?  
    • RMJ
      Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
    • Scott Adams
      I think that with the elevated antibodies found in past tests, and a negative biopsy, you are firmly in the NCGS camp. If symptoms go away on a gluten-free diet it would be confirmation that you should likely stay on the diet.
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