Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Columbia Presbyterian


mela14

Recommended Posts

mela14 Enthusiast

I'm hoping that this post gets on the board. I have not been able to post from home so I am trying now from the office.

Does anyone have any experience with Columbia Presbyterian in NY?

I made an appointment with Dr. Peter Green for the end of March but he does not take my insurace so I am thinking about going with another doctor there that does take my insurance. Her name is Dr. Suzi Lee. I am moving up to NJ in about a month and am looking for someone competent in that area. I wil be moving to Manalapan, NJ and as of now I will make the ride into NY for this appointment.

Thanks,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mela14 Enthusiast

I just found a dr. Lawrence Pickover in East Brunswick, NJ..anyone know of him?

He was listed on this website.

thanks,

celiac3270 Collaborator

I live in NY and know that Columbia Prebyterian has a good reputation. It is known also for having some sort of celiac program. Of course, I don't know about the individual doctor, but the hospital is good :)

  • 3 weeks later...
irish Contributor

Hi, I go to Dr. Lee in Columia Presbyterian Hospital. She is very good. She is understanding. The hospital is very good. There is also a nutritionist there that is very good. But unfortunately she does not take any insurance.

Loretta

  • 4 weeks later...
Hearts Apprentice

Hi,

I don't have personal experience with Dr. Suzi Lee but someone strongly recommended her to me for my son. Unforturnately for us, she doesn't take pediatric patients. Hope that helps for you!

While we are on the subject of Columbia.. Does anyone know of Dr. Amy DeFelice who is a pediatric GI at Columbia?

celiac3270 Collaborator

I go to Dr. Levy (but he only takes kids) at Columbia Presbyterian. The nutritionist you're probably refering to is Anne Lee -- Dr. Green sends all his patients to her if they need to see a nutritionist.

Also, I had my surgery done at Columbia Presbyterian. It's a very clean, new-looking hospital--nice nurses--good doctors.....I would definitely go there above any other hospital.

Hearts Apprentice

Did you like Dr. Levy? I have an appt. for my son but still not clear if he takes our insurance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

He's terrific...I very highly recommend him to anyone with celiac children in New York. Diligent, persistent, spends time with you and doesn't make you feel like you're being rushed the way some doctors do....

Hearts Apprentice
:rolleyes: Thanks for that feedback!
celiac3270 Collaborator

Dr. Levy also has an office at 16 East 60th street, suite 410 (that's 5th avenue), so you don't need to go all the way up to Columbia Presbyterian. Oh...full name: Joseph Levy (since there might be multiple Levys :)). He is a great doctor, though--helped with the celiac, but also found the malrotation--very thorough and persistent. His phone number is 212-305-5903. Sorry if I'm getting too assertive here, but he's been a terrific doctor for me and everyone else I know who has went to him.

mela14 Enthusiast

OK..guys...I have an appt this Friday with Dr Susie Lee at Columbia Presbyterian. I also put a call into Ann Lee the Nutritionist but she doens't have time to see me this friday. She actually called back and left a message on my machine!

I'm going to try to make an appt with her for next week.

has anyone seen her there and what was your experience like?

i really need some diet guidance as I have soooooo many intolerances and have been suffering terribly with my diet.

any info on what to expect there is appreciated. Of course I will bring whatever blood tests I have so they have something to look at.

I don't know what I am hoping for.....i know that the only real thing that will help is Not eating gluten! I have been trying so hard but have not made enough of an improvement. I just think it has gone on too long udiagnosed that it will take longer to get better.

wish me luck!

bigapplekathleen Contributor

Hi there,

I see both Anne Lee and Dr Green at Columbia Presbyterian. They are both amazing to work with. I found both to be totally approachable about anything. In fact, when I have called DR Green with pressing issues, he has personally called me back. He will spend A LOT of time with you at your first visit and at follow-ups as needed. I saw Anne several times for help with the gluten-free diet and for help with other allergies. I have even emailed her with problems with I was out of the country; she was a great help in dealing with food concerns while traveling.

The Celiac Disease Center as Columbia also has Patient Education Days throughout the year. They have a family screening day coming up this month as well. They are on the cutting edge of everything celiac.

Best wishes,

Kathleen

Diagnosed with celiac disease - Aug 2003 - by blood test

Diagnosis is now officially non-celiac gluten intolerance (because I don't have the genes for Celiac)

Diagnosed with peripheral neuropathy, ovarian problems, anemia, multiple food allergies, etc. (the list is HUGE!)

incredibly improved on a very strict gluten-free diet but still get symptoms (probably due to other food allergies) ...a gluten challenge is coming up...

  • 4 months later...
Funkalicious Newbie

Hi,

I was just told yesturday that I have celiac disease, I live in NJ so I'm going to try to see Dr's at Comumbia. Would love to hear more feedback from your first visit and any follow up visits. Thanks for sharing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.