Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Columbia Presbyterian


mela14

Recommended Posts

mela14 Enthusiast

I'm hoping that this post gets on the board. I have not been able to post from home so I am trying now from the office.

Does anyone have any experience with Columbia Presbyterian in NY?

I made an appointment with Dr. Peter Green for the end of March but he does not take my insurace so I am thinking about going with another doctor there that does take my insurance. Her name is Dr. Suzi Lee. I am moving up to NJ in about a month and am looking for someone competent in that area. I wil be moving to Manalapan, NJ and as of now I will make the ride into NY for this appointment.

Thanks,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mela14 Enthusiast

I just found a dr. Lawrence Pickover in East Brunswick, NJ..anyone know of him?

He was listed on this website.

thanks,

celiac3270 Collaborator

I live in NY and know that Columbia Prebyterian has a good reputation. It is known also for having some sort of celiac program. Of course, I don't know about the individual doctor, but the hospital is good :)

  • 3 weeks later...
irish Contributor

Hi, I go to Dr. Lee in Columia Presbyterian Hospital. She is very good. She is understanding. The hospital is very good. There is also a nutritionist there that is very good. But unfortunately she does not take any insurance.

Loretta

  • 4 weeks later...
Hearts Apprentice

Hi,

I don't have personal experience with Dr. Suzi Lee but someone strongly recommended her to me for my son. Unforturnately for us, she doesn't take pediatric patients. Hope that helps for you!

While we are on the subject of Columbia.. Does anyone know of Dr. Amy DeFelice who is a pediatric GI at Columbia?

celiac3270 Collaborator

I go to Dr. Levy (but he only takes kids) at Columbia Presbyterian. The nutritionist you're probably refering to is Anne Lee -- Dr. Green sends all his patients to her if they need to see a nutritionist.

Also, I had my surgery done at Columbia Presbyterian. It's a very clean, new-looking hospital--nice nurses--good doctors.....I would definitely go there above any other hospital.

Hearts Apprentice

Did you like Dr. Levy? I have an appt. for my son but still not clear if he takes our insurance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

He's terrific...I very highly recommend him to anyone with celiac children in New York. Diligent, persistent, spends time with you and doesn't make you feel like you're being rushed the way some doctors do....

Hearts Apprentice
:rolleyes: Thanks for that feedback!
celiac3270 Collaborator

Dr. Levy also has an office at 16 East 60th street, suite 410 (that's 5th avenue), so you don't need to go all the way up to Columbia Presbyterian. Oh...full name: Joseph Levy (since there might be multiple Levys :)). He is a great doctor, though--helped with the celiac, but also found the malrotation--very thorough and persistent. His phone number is 212-305-5903. Sorry if I'm getting too assertive here, but he's been a terrific doctor for me and everyone else I know who has went to him.

mela14 Enthusiast

OK..guys...I have an appt this Friday with Dr Susie Lee at Columbia Presbyterian. I also put a call into Ann Lee the Nutritionist but she doens't have time to see me this friday. She actually called back and left a message on my machine!

I'm going to try to make an appt with her for next week.

has anyone seen her there and what was your experience like?

i really need some diet guidance as I have soooooo many intolerances and have been suffering terribly with my diet.

any info on what to expect there is appreciated. Of course I will bring whatever blood tests I have so they have something to look at.

I don't know what I am hoping for.....i know that the only real thing that will help is Not eating gluten! I have been trying so hard but have not made enough of an improvement. I just think it has gone on too long udiagnosed that it will take longer to get better.

wish me luck!

bigapplekathleen Contributor

Hi there,

I see both Anne Lee and Dr Green at Columbia Presbyterian. They are both amazing to work with. I found both to be totally approachable about anything. In fact, when I have called DR Green with pressing issues, he has personally called me back. He will spend A LOT of time with you at your first visit and at follow-ups as needed. I saw Anne several times for help with the gluten-free diet and for help with other allergies. I have even emailed her with problems with I was out of the country; she was a great help in dealing with food concerns while traveling.

The Celiac Disease Center as Columbia also has Patient Education Days throughout the year. They have a family screening day coming up this month as well. They are on the cutting edge of everything celiac.

Best wishes,

Kathleen

Diagnosed with celiac disease - Aug 2003 - by blood test

Diagnosis is now officially non-celiac gluten intolerance (because I don't have the genes for Celiac)

Diagnosed with peripheral neuropathy, ovarian problems, anemia, multiple food allergies, etc. (the list is HUGE!)

incredibly improved on a very strict gluten-free diet but still get symptoms (probably due to other food allergies) ...a gluten challenge is coming up...

  • 4 months later...
Funkalicious Newbie

Hi,

I was just told yesturday that I have celiac disease, I live in NJ so I'm going to try to see Dr's at Comumbia. Would love to hear more feedback from your first visit and any follow up visits. Thanks for sharing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,066
    • Most Online (within 30 mins)
      7,748

    lgcalvitti
    Newest Member
    lgcalvitti
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.