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Columbia Presbyterian

mela14

By mela14
in Doctors

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mela14 Enthusiast
mela14
Posted

I'm hoping that this post gets on the board. I have not been able to post from home so I am trying now from the office.

Does anyone have any experience with Columbia Presbyterian in NY?

I made an appointment with Dr. Peter Green for the end of March but he does not take my insurace so I am thinking about going with another doctor there that does take my insurance. Her name is Dr. Suzi Lee. I am moving up to NJ in about a month and am looking for someone competent in that area. I wil be moving to Manalapan, NJ and as of now I will make the ride into NY for this appointment.

Thanks,

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mela14 Enthusiast
mela14
Posted
  • Author

I just found a dr. Lawrence Pickover in East Brunswick, NJ..anyone know of him?

He was listed on this website.

thanks,

celiac3270 Collaborator
celiac3270
Posted

I live in NY and know that Columbia Prebyterian has a good reputation. It is known also for having some sort of celiac program. Of course, I don't know about the individual doctor, but the hospital is good :)

  • 3 weeks later...
irish Contributor
irish
Posted

Hi, I go to Dr. Lee in Columia Presbyterian Hospital. She is very good. She is understanding. The hospital is very good. There is also a nutritionist there that is very good. But unfortunately she does not take any insurance.

Loretta

  • 4 weeks later...
Hearts Apprentice
Hearts
Posted

Hi,

I don't have personal experience with Dr. Suzi Lee but someone strongly recommended her to me for my son. Unforturnately for us, she doesn't take pediatric patients. Hope that helps for you!

While we are on the subject of Columbia.. Does anyone know of Dr. Amy DeFelice who is a pediatric GI at Columbia?

celiac3270 Collaborator
celiac3270
Posted

I go to Dr. Levy (but he only takes kids) at Columbia Presbyterian. The nutritionist you're probably refering to is Anne Lee -- Dr. Green sends all his patients to her if they need to see a nutritionist.

Also, I had my surgery done at Columbia Presbyterian. It's a very clean, new-looking hospital--nice nurses--good doctors.....I would definitely go there above any other hospital.

Hearts Apprentice
Hearts
Posted

Did you like Dr. Levy? I have an appt. for my son but still not clear if he takes our insurance.

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celiac3270 Collaborator
celiac3270
Posted

He's terrific...I very highly recommend him to anyone with celiac children in New York. Diligent, persistent, spends time with you and doesn't make you feel like you're being rushed the way some doctors do....

Hearts Apprentice
Hearts
Posted
:rolleyes: Thanks for that feedback!
celiac3270 Collaborator
celiac3270
Posted

Dr. Levy also has an office at 16 East 60th street, suite 410 (that's 5th avenue), so you don't need to go all the way up to Columbia Presbyterian. Oh...full name: Joseph Levy (since there might be multiple Levys :)). He is a great doctor, though--helped with the celiac, but also found the malrotation--very thorough and persistent. His phone number is 212-305-5903. Sorry if I'm getting too assertive here, but he's been a terrific doctor for me and everyone else I know who has went to him.

mela14 Enthusiast
mela14
Posted
  • Author

OK..guys...I have an appt this Friday with Dr Susie Lee at Columbia Presbyterian. I also put a call into Ann Lee the Nutritionist but she doens't have time to see me this friday. She actually called back and left a message on my machine!

I'm going to try to make an appt with her for next week.

has anyone seen her there and what was your experience like?

i really need some diet guidance as I have soooooo many intolerances and have been suffering terribly with my diet.

any info on what to expect there is appreciated. Of course I will bring whatever blood tests I have so they have something to look at.

I don't know what I am hoping for.....i know that the only real thing that will help is Not eating gluten! I have been trying so hard but have not made enough of an improvement. I just think it has gone on too long udiagnosed that it will take longer to get better.

wish me luck!

bigapplekathleen Contributor
bigapplekathleen
Posted

Hi there,

I see both Anne Lee and Dr Green at Columbia Presbyterian. They are both amazing to work with. I found both to be totally approachable about anything. In fact, when I have called DR Green with pressing issues, he has personally called me back. He will spend A LOT of time with you at your first visit and at follow-ups as needed. I saw Anne several times for help with the gluten-free diet and for help with other allergies. I have even emailed her with problems with I was out of the country; she was a great help in dealing with food concerns while traveling.

The Celiac Disease Center as Columbia also has Patient Education Days throughout the year. They have a family screening day coming up this month as well. They are on the cutting edge of everything celiac.

Best wishes,

Kathleen

Diagnosed with celiac disease - Aug 2003 - by blood test

Diagnosis is now officially non-celiac gluten intolerance (because I don't have the genes for Celiac)

Diagnosed with peripheral neuropathy, ovarian problems, anemia, multiple food allergies, etc. (the list is HUGE!)

incredibly improved on a very strict gluten-free diet but still get symptoms (probably due to other food allergies) ...a gluten challenge is coming up...

  • 4 months later...
Funkalicious Newbie
Funkalicious
Posted

Hi,

I was just told yesturday that I have celiac disease, I live in NJ so I'm going to try to see Dr's at Comumbia. Would love to hear more feedback from your first visit and any follow up visits. Thanks for sharing.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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    • AlwaysLearning
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