Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing? Please Help


JgeorgeSCR

Recommended Posts

JgeorgeSCR Apprentice

Is it possible your stomach can feel a bit worse as you heel? Other symptoms seem to be improving? However, never had much D before diagnosis, now it seems more frequent? Maybe reacting to soy or vitamins? vitamins probably aren't doing much though if they aren't being absorbed right?

Also, Anyone else find it difficut to digest some gluten free food early on in the gluten-free Diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Those special gluten-free foods are very hard to digest and are not recommended when starting the diet. And yes, you may be intolerant to soy as well, and it can certainly stop you from healing. Have you checked your vitamins for gluten? You may have to find out what the filler is, it might be wheat.

missy'smom Collaborator

Many use a liquid or powdered multivitamin because they are more easily absorbed. For a while, sesame seeds, flax seeds and tomato seeds irritated my system and gave me D. Later on I was able to re-introduce them.

Kritter Rookie

As a matter of fact, I am having a very similar experience. I don't ever remember being as gassy or having as frequent D as I do now that I'm gluten free for two solid months. I am not happy that you are having this problem too, but I can say I'm a little bit relieved not to be the only one for whom this issue has worsened since going g.f.

I was wondering why things should be worse in the stomach/intestinal area and better in all other aspects. With the help of some great folks on this site we did a little trouble-shooting. You might be interested in what we tried, since perhaps some of these ideas could help you. At first we considered that my magnesium intake might be too high, and now that I'm absorbing nutrients better, that I should cut my magnesium down (that can cause "loose stools") Then I tried upping my calcium (this can cause the opposite - the big C - if you use Calcium Carbonate.) Both of those ideas were really good ones, but not particularily helpful in my case.

My Mom, who is a nurse (but not a celiac) thinks that the grains that we use to substitute for regular old white flour are quite a bit harder on my system. UrsaMajor seems to have the same viewpoint. Based on that, I'm going to try to cut grains way down in my diet (like only have them for breakfast, and then just eat fresh meat, fruit, vegies, nuts etc. the rest of the day.) I, for one, am hoping this helps. I certainly see a significant worsening in the D on days when I eat a ton of grains and nothing else.

Good luck to you! If you find something that helps, please let me know. I'll let you know how cutting down on the grains goes for me.

Kristin

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.