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Gluten Traces In Food.

Krystens mummy

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Krystens mummy Enthusiast
Krystens mummy
Posted

Hi just wanted to know if this is causing my daughter harm. Just recently I have been trying her with food that may contain traces of gluten. She shows no signs of a gut reaction but gets what looks like dribble rash on her chin. If it isnt causing gut reactions is it safe? she is 16 months old and what I call a diet diagnosed celiac. She has all the symptoms of celiac even what looks remakably like DH when glutened a lot and last week found out that it is really prevelant in my dads side of the family.

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Krystens mummy Enthusiast
Krystens mummy
Posted
  • Author

I also would like to know if you can get a reaction to shampoo if you don't ingest it? I haven't used any with her im just curious. thanks.

shayesmom Rookie
shayesmom
Posted
Hi just wanted to know if this is causing my daughter harm. Just recently I have been trying her with food that may contain traces of gluten. She shows no signs of a gut reaction but gets what looks like dribble rash on her chin. If it isnt causing gut reactions is it safe? she is 16 months old and what I call a diet diagnosed celiac. She has all the symptoms of celiac even what looks remakably like DH when glutened a lot and last week found out that it is really prevelant in my dads side of the family.

If she's getting rashes and there are confirmed Celiacs in the family, then most likely, she is also celiac. That means that any amount of gluten will harm her and it all needs to be avoided the same way you'd avoid rat poison. You can't really base things off the presence of GI issues. Many celiacs show none at all. The damage is still being done. The level of error when it comes to trace gluten is just a crumb. 1/8th of a wheat thin cracker creates damage that will take 4-6 weeks to heal. So it's best to play it safe.

As far as shampoo and personal hygiene products, it's important they all be gluten-free. That means yours as well. If you use shampoo with wheat in it, towel off and then go to make her food...you are essentially contaminating it. So make sure all soaps, lotions, dishwashing liquid and laundry detergents are gluten-free (nothing like your dishcloths being contaminated so that you're wiping gluten onto your clean dishes and utensils). ;)

My dd is a "diet diagnosed celiac" as well. The only bad part to this is that many times, people use this as an excuse to trial gluten over and over again. We all struggle with this. The best thing to do is continue reading on this site and come to understand just how bad continual glutenings can be. And also realize that this diet is much tougher in the beginning than it will be 6 months, 1 year or even 5 years from now. It all gets easier and one day, it will be second nature for you. So hang in there. It gets better.

Krystens mummy Enthusiast
Krystens mummy
Posted
  • Author

Thanks for all of your advice. When we first went gluten free with her we were very catious about how we handled her food. She got so much better and started to shoot up. Unfortunately it seems that she has stopped growing again I hope that isn't because I was getting too complacent. A mothers guilt is the worst kind.

psawyer Proficient
psawyer
Posted

"May contain traces of xxx" is a voluntary disclosure statement. It may be nothing more than covering their @$$ against possible lawsuits. It may mean that xxx is used somewhere in the same premises, or even on the same lines, in making other products. There is no agreed legal definition of what "traces" are. :(

As I said, this statement is voluntary, so just because you don't see it, DO NOT ASSUME that traces of xxx are impossible in the product you are looking at. :angry:

I take this with a grain of salt myself. If I have a choice between products that do and do not say this, I tend to choose the ones that don't, even though I know that the difference is entirely in my head. There is really no difference in risk. Now, if a label says that the product is made in a gluten-free facility, then that is another voluntary statement, but one that may have some significance to us. :)

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    • knitty kitty
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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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