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Newly Diagnosed In Florida!

Tori F.

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Tori F. Newbie
Tori F.
Posted

Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

  • 2 weeks later...
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Janelle Newbie
Janelle
Posted

:D Hi There Tori,

I too am recently diagnosed celiac disease and having a very confusing time. Sounds as though I am much older than you, but I am sure we have the same goals in mind. Getting through this celiac disease life, right?

ShayFL Enthusiast
ShayFL
Posted

Hi Tori!

I am one month in as well. I live in Tampa FL. But I have a niece in St. Augustine that I visit from time to time.

  • 2 weeks later...
katebuggie28 Apprentice
katebuggie28
Posted

Hi there. I am new to this too. (6 days) I used to travel to Baker county often. (glen st. mary / macclenny/sanderson) Are you near 125?I live near Orlando, but I plan on making a trip up that way soon, so hopefully you/we can find a few people to form a support group. I know it is very small town there, but I am sure that there are others in that area that can relate. Good luck

katebuggie28 Apprentice
katebuggie28
Posted
Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

Open Original Shared Link

they have a group in Jax. Hope this helps.

CarolAnne Apprentice
CarolAnne
Posted

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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