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Newly Diagnosed In Florida!


Tori F.

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Tori F. Newbie

Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

  • 2 weeks later...

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Janelle Newbie

:D Hi There Tori,

I too am recently diagnosed celiac disease and having a very confusing time. Sounds as though I am much older than you, but I am sure we have the same goals in mind. Getting through this celiac disease life, right?

ShayFL Enthusiast

Hi Tori!

I am one month in as well. I live in Tampa FL. But I have a niece in St. Augustine that I visit from time to time.

  • 2 weeks later...
katebuggie28 Apprentice

Hi there. I am new to this too. (6 days) I used to travel to Baker county often. (glen st. mary / macclenny/sanderson) Are you near 125?I live near Orlando, but I plan on making a trip up that way soon, so hopefully you/we can find a few people to form a support group. I know it is very small town there, but I am sure that there are others in that area that can relate. Good luck

katebuggie28 Apprentice
Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

Open Original Shared Link

they have a group in Jax. Hope this helps.

CarolAnne Apprentice

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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