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I'm A Weird Celiac - Gained Weight?

jparsick84

By jparsick84
in Related Issues & Disorders

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Kit.DaMommy Rookie
Kit.DaMommy
Posted

Oh seeing all these posts made me feel so much better. After my first daughter I lost the weight just fine, but my second daughter was premie and nobody knew why and now my doctor says the celiac is probably why. Anyways after I had her I couldn't lose it like I did before, I actually gained. I am currently 55lbs overweight, I just went gluten free monday, hopefully I can finally get back into my cute pants. lol. Thank you all.

Love to all,

be blessed

  • 3 weeks later...
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ATC-BS-MS Apprentice
ATC-BS-MS
Posted
I'm already a bit of an abnormality, as my Celiac symptoms were always strictly skin-related (DH like you wouldn't believe!). I was VERY lucky to not have the gastro symptoms so common with most Celiacs.

In relation to this, I actually GAINED 50 pounds before they diagnosed me. (We realized there was a problem when I was exercising 6 hours a week and still gaining weight). I think it's because I was always hungry, so I just kept eating, and I must have been getting enough of the good stuff that I was absorbing at least some of the food I was eating. Also, my symptoms were present for only about a year before diagnosis so I don't think my intestines were too badly damaged.

So my question is, is there anyone else out there who actually gained weight? My doctor was really confused by the weight gain being related to Celiac, but since going gluten-free, I haven't gained any more weight. Just knowing there are other "Celiac Weirdos" out there would be really great as I start to try to lose this weight...Thanks. :unsure:

I am also a wierd case of Celiac and casein sensitivity. I gained about 15 pounds FAST! This was very concerning to me since I am small framed and only 5'2". I was getting so frustrated and my doctor tried to put me on a 1000 calorie diet for diabetics. This was not good since I could barely function.

I had the same problem as you with feeling hungry all the time, but no absorption. I had diarrehea constantly but gained the weight.

I encourage you to keep eating healthy and starting/continuing to exercise...the weight will come off after your body stays in a steady state. I have successfully lost about 10 pounds of the weight and I am sure you will be very successful too!!

If you ever want tips or suggestions about exercising, I have lots of websites and workouts.

Malficient Newbie
Malficient
Posted

I too gained weight after going gluten free (I've always been a bit overweight). I tracked everything I ate for a full month, and showed it to my dr. She realized I was eating too many carbs and not enough lean protein (I'm also mostly vegetarian). I was eating risotto at least a couple days a week, and brown rice pasta dishes, and thai dishes with rice or cellophane noodles (and my triglyercides were way too high). So I cut back, focused more on veggie dishes and leaner protein like tofu and fish, and have gone down down a pants size. So that might be one angle to look at. Just a suggestion!

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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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      Issues before diagnosis

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      Dizziness after eating green beans?

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