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Could I Have Undiagnosed Celiac And Gain Weight?


Britt-ME

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Britt-ME Newbie

Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt


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LuvMoosic4life Collaborator
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi. I dont know and answer to your queston, but this may help: I am not overwieght, but was most of my life. I have not been diagnosed yet either, but feel amazing when I am gluten free. I am a person who puts on wieght easily and has to watch what they eat. I do find that I gain wieght much faster when eating gluten foods than when eating gluten free. actually, when gluten free, I feel I can eat much more and find myself getting hungry more frequently. when eating gluten I feel like I am lacking nutrients and crave food, but at the same time the food just sits in my stomach. This doesnt happen gluten free. Many of my family members have the same symptoms as me but I know they will never get tested because they are stubborn, but pretty much my whole family is overwieght. The foods my family loves are all based around gluten. I realize it more now after going to family get togetehers where there is pot-luck, there is not one thing that is gluten free....

I have talked to other people with celiacs who say they also gain wieght on gluten....I think its differant for everyone.

Kaycee Collaborator

Yes Britt you can have coeliac and gain weight. I am one of those. For me prior to diagnosis I had a terrible time with my weight. I'm not saying by going gluten free all my weight problems have gone, far from it, but at least I have remained about the same weight since being gluten free, whereas before it was slowly creeping up.

Cathy

Aleshia Contributor
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

hi, yes you can gain weight but a lot of doctors won't acknowledge this! :angry: anyway if you look on Open Original Shared Link it lists weight gain as one of the symptoms

also on these other sites:

Open Original Shared Link

Open Original Shared Link

and there is an article here https://www.celiac.com/articles/1033/1/Celi...roda/Page1.html

you cand do a search on google by putting in the key words "weight gain and celiac disease" and you will find quite a few links to look at

Joni63 Collaborator
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi Britt,

Before being diagnosed with Celiac I was steadily gaining weight. I always had this nagging feeling in my stomach and felt I needed to eat. I also had hypogycemia symptoms and would get what seemed like low blood sugar if I didn't eat every 2 - 3 hours.

Since going gluten free the hypoclycemia and steady weight gain is much better. I still struggle to lose weight but think it's because I still feel the need to eat more than my body needs. I guess that is more habit than anything at this point. I remember once I stopped dieting and ate whatever I wanted and as much as I wanted (pre-gluten free) and I felt better than I had in a long time. I think my body was craving nutrients so badly that it was starving even though I was over eating. And I think the Cealics that gain weight tend to have constipation more as a symptom than diarrhea. But most doctors will tell you that you don't have the typical symptoms and it can't be Celiac.

So, yes it is highly possible.

Britt-ME Newbie

Thank you all for replying. I feel much better now. I can't afford to be tested for celiac disease, but I will definatly go gluten free.

Joni63 Collaborator

If you felt better when you were gluten free before, it can't hurt to try the diet again.

Also, if you were tested while you were gluten free the tests would have been negative after 2 years. I was only gluten free for 6 months when my bloodwork all came back negative and it was clearly positive the first time.


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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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