Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Organ Donors

Guest Leidenschaft

By Guest Leidenschaft
in Related Issues & Disorders

Recommended Posts

Guest Leidenschaft
Guest Leidenschaft
Posted

Hi, not sure if this is the best place for this...? I did a search on the subject of "Organ Donors" in this forum and although I found many interesting posts, I'm still unsure about our status as Organ Donors?

My mom, gluten-free 15 years, has told me that we (we live in Canada) are not eligible to donate blood, however we can donate organs.

Can somebody explain to me why, and what the difference is? Aren't our organs made up of our blood as well?

Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

Hello;

When I inquired into how this could be to the B.C. organ donor registry they told me that the organs were stripped of the blood and thoroughly cleaned and disinfected before they were used. So there would be no danger of passing on an auto immune disease.

I carry an organ donor card, and still can't give blood. :blink: Strange but true.

lovegrov Collaborator
lovegrov
Posted

In the U.S. we can give blood. Always seemed very weird to me you can't in Canada. I don't think you can pass this along just by giving blood.

richard

Guest Viola
Guest Viola
Posted

I think it's weird as well. However their reasoning is that the person needing blood is in a weakened position in the first place. They want to be very sure that giving them blood from a person with an auto immune disease won't compromise their recovery. I gather there is still research going on up here on the subject. So far we are still not allowed.

My question is that so many people are still un-diagnosed and they are likely giving blood. I don't think the blood goes through the celiac testing before it is given out.

lovegrov Collaborator
lovegrov
Posted

I'm sure the blood doesn't go through celiac testing, plus there are many people with other undiagnosed autoimmune conditions donating. Not allowing blood donation just seems silly to me.

richard

celiac3270 Collaborator
celiac3270
Posted
I'm sure the blood doesn't go through celiac testing, plus there are many people with other undiagnosed autoimmune conditions donating. Not allowing blood donation just seems silly to me.

richard

Good point--I didn't even think about all the undiagnosed celiacs out there donating blood.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,823
    • Most Online (within 30 mins)
      7,748
    RuthD
    Newest Member
    RuthD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      TTG IgA 0.30 U/ml: further tests?

      By RMJ · Posted

      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Gluten Intolerance And Low White Blood Cell Counts?

      By cristiana · Posted

      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      The patient is positive for DQA1*05, one half of the DQ2 heterodimer

      By Lori Lavell · Posted

      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
    • lookingforanswersone
      TTG IgA 0.30 U/ml: further tests?

      By lookingforanswersone · Posted

      Hi, just looked and it doesn't list that. Says : Tissue Transglutaminase (IgA)  0.30 (results - negative) U/ml (Units ) Reference range 0.00 - 10.00
    • Suze046
      Gluten Intolerance And Low White Blood Cell Counts?

      By Suze046 · Posted

      Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.
×
×
  • Create New...