Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Us Celebrate! Ttg At 2.8!


CeliacMom2008

Recommended Posts

CeliacMom2008 Enthusiast

:D I can barely contain my excitement! Our first follow up blood test came back today...2.8!!!!!!!!!!!! My baby's TTG dropped from 100 in November to 2.8!!! We had been told to be happy with any significant decrease. I was prepared to be happy with 50. 30 would've made my day. But 2.8! WOW! Even with his accidental glutening last month, his levels are still so low!! (But the 1.5 weeks of reaction were enough to keep us being more careful!)

I'm so excited! I'm going to cut out of work early and decorate the house with 2.8 signs!! I'm so excited! (Did I mention that already??) He's been so awesome about all of the changes and it paid off!

It's definitely a GOOD day!!! :D:D:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

Woot Woot!!!!!!!!!!! That's something that deserves a celebration!

Joni63 Collaborator
:D I can barely contain my excitement! Our first follow up blood test came back today...2.8!!!!!!!!!!!! My baby's TTG dropped from 100 in November to 2.8!!! We had been told to be happy with any significant decrease. I was prepared to be happy with 50. 30 would've made my day. But 2.8! WOW! Even with his accidental glutening last month, his levels are still so low!! (But the 1.5 weeks of reaction were enough to keep us being more careful!)

I'm so excited! I'm going to cut out of work early and decorate the house with 2.8 signs!! I'm so excited! (Did I mention that already??) He's been so awesome about all of the changes and it paid off!

It's definitely a GOOD day!!! :D:D:D

That is TERRIFIC news! I'm so happy for you and your son. What an enormous drop that was!!! :D

gfpaperdoll Rookie

Wow, that is really amazing - you & your son deserve a huge round of applause. Those of us that do this everyday know how hard you have worked to achieve those results!!!!!! B)B)B)

CeliacMom2008 Enthusiast

It is a huge accomplishment and I'm really proud of all of us! My mom has been so incredible - she bakes bread for cold lunches, she has us over for dinner a couple times a week, she helps shop/research, has been a shoulder to cry on, and even takes a "hot" lunch to my son once or twice a week or brings him home. My son has been more than incredible - he has only "complained" a couple of times and they weren't really complaints just honest comments like, "I wish I was normal" and "I wish I could eat what other kids eat." He has been so strong about taking his own slice of cake to birthday parties, eating quesadillas while everyone in his classroom ate pizza (pizza has made him sick for some reason so we're waiting until this summer to try it again), trying all kinds of new foods, eating PB&J "just one more time, please" (said by me when I just don't have time to make another kind of lunch). My hubby who is really emotionally attached to eating out has just accepted our new eat at home lifestyle without complaint in the least. His teacher who, bless her heart, has gone above and beyond to make this OK at school.

...I feel like we've just won an Academy Award and I'm giving my "thank you" speech!! But you all know, it is hard. And we have been so fortunate that we've had so many people to help us. Especially everyone here who has been so kind and helpful...like when I was just SURE Bob's Redmill hot cereal wasn't gluten free (which he eats every other day now!). I know not everyone is as fortunate as we are and some families aren't as supportive and helpful. When I read some of these posts I want to wring some families' necks!! And then I want to invite everyone over for dinner!

We have decided to start a ROCK group. We have been so blessed I want to help others. I know I'm sort of the Mary Poppins of the forum (maybe I should change my username! :lol: ). I truly do believe my calling is to help others adjust and learn to live with Celiac. I know we are very new and I certainly don't know everything there is to know about this disease, but I also know I'm really good at helping people. I'm very excited to take this on. I've always been very involved in charity work. But this is a cause that goes beyond personal! It's my kid and it's so many other kids out there. I would love to see every child who has ever been into the doctor more than once for the same "mystery" symptom tested for Celiac. My son was tested for rheumatoid arthritis at age 3. Miralax was prescribed for him at age 6 because his doctor felt he had diarrhea because he was constipated! And shortly there after was put on daily fiber pills to "bulk up" his stools. And finally after 8 years, at least 4 different doctors, huge quantities of fiber pills and ibuprofen someone said "Let's run this test just to rule it out." And from what I've read here, my son was barely sick compared to so many other kids! That is just wrong.

And then there are the people who need help right after diagnosis. I would've loved it if someone offered to take me shopping that first time (and second, and third!). The woman who brought my son gluten free Christmas cookies on Christmas Eve was an angel in my opinion. She didn't even know us! But one week into gluten free (my son didn't want to wait until after the holidays to start gluten-free), it was the greatest gift we could have received! I want to do that for others. I want to hold a parent's hand as they cry and give them comfort and hope.

And now that we got those amazing results, I feel like we still have a lot of learning to do, but we're ready to help others. We've proved we can do this! And darn it, I'm proud of us!! I'm proud of me! How bad does that sound?? But it's true. I was really not a good cook 6 months ago! People regularly joked about my cooking. Now I know I'm getting to be a darn good cook! I actually get excited about making yummy food!

OK, this has gotten way off course. But it's my own post, so that's not really hijacking, just going off on a tangent! This time it's a good one!

Ursa Major Collaborator

Congratulations! You are doing awesome. And your son is a trooper, you can be proud of him. No cheating and being so good about the diet. And what a fabulous mother you have!

You ought to be proud of all of you and have a right to boast a little! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    4. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,005
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.